Hey Gopal,
Do find mor einfo on the treatment that your doc's wife is on.
Like you said, since it's experimental, it may not be suitable to
suggest it to everyone but nevertheless there is hope.

Buzz me ven u in India in case u want to discuss anything.

Tc..
G.
--- In ALS_India@yahoogroups.com, Gopala Krishna Gokeda
<gokeda@...> wrote:
>
> Hello team,
>  
> I have a news to share with you. I live in Collingwood, Ontario
and my family doctor is Peter. His wife stephanie was diagnosed with
ALS about 2 years back. And gradually her health deteriorated and
she was put on life support. Now, after administering an
experimental drug on her, quite miraculosly she was walking back
again a month ago and now I heard she is even cooking now. I do not
know any details of this drug except that it costs about $500 per
month for the dose. Besides money, it is still experimental and
available only to select people. Her husband being a doctor, and
being a member of ALS society of Canada, I guess he is on a
different page.
>  
> After going throuigh a month treatment at a Kerala Ayurveda
center, my mom didn't show any signs of improvement. Peter advised
me to bring my mom here immediately, so I am going to India next
friday. I shall be in Visakhapatnam, India till 14th of August. I am
planning to go to Hyderabad couple of times for getting visa for my
parents.
>  
> I am speaking with my doctor this week again before I am going to
India next week.I shall post it here if I hear more details.  
>  
> Padma:
>  
> My sister lives in Woodland Hills, LA. She is looking for ALS
support there. If it:s ok with you, could you please me your contact
#, she shall call you. She is looking for support about ALS in US.
>  
> I can be reached at
>  
> 705-293-0323
> 705-888-1246
> 891-2708330 (Visakhapatnam)
>  
> Gopal
>  
>  
>
> --- On Fri, 7/18/08, gauravjain_80 <gauravjain_80@...> wrote:
>
> From: gauravjain_80 <gauravjain_80@...>
> Subject: [ALS_India] Re: Support group
> To: ALS_India@yahoogroups.com
> Date: Friday, July 18, 2008, 2:08 PM
>
>
>
>
>
>
> Hey Padma,
> I think it's a good idea.
> Although, I am not sure how many of the group members are
available
> online on those days?
> Let's leave the question to the house and see what responses we
get
> in a week's time.
> So people, wake up and post your question, concerns, queries etc.
>
> I have been talking to a lot of CALS and PALS who do not have
> Internet access. For them, phone works best. It's amazing to see
how
> there are so many people out there who do not even understand what
> is happening to their bodies and how to cope with it.
>
> Padma, if you come across any CALS who have their PALS in India,
> please forward our group address and let's talk to their PALS and
> provide some support.
>
> I know for sure that emotional support is the biggest requirement.
> I for 1 know that I haven't greived the loss of my father still.
> Blame it on situation, blame it on the timing. I guess I just
didn't
> get time from being the stronger one for everyone to depend on.
>
> Let's see how many people respond to this message and let's tae
from
> there..
>
> Thanks for all your support Padma...
>
> We are glad to have you on board with us.
>
> Cheers.
> G.
>
> --- In ALS_India@yahoogrou ps.com, Padma Varanasi
> <padma.varanasi@ ...> wrote:
> >
> > Hi Gaurav.
> >
> > I'm back in Los Angeles.
> >
> > Once a month we have support group where the patients and their
> care
> > givers meet and discuss not only
> > about what is available but also emotions they are going through
> and
> > the stress, worries. It is more pyschological support
> > too.
> >
> > Since everyone in india spread out instead of meeting real-time,
> I
> > thought we could set aside a day/time per month and discuss
> > over internet? Say the 3rd thursday of the month or something
> like
> > that.
> >
> > IT is really nice to be able to talk about our feelings,
worries,
> and
> > also get the knowledge on ALS and what is available resource
wise
> etc.
> >
> > Also, being in the US I'm happy to help in anyway...
> >
> > I'll be in INdia in August.
> >
> > Let me know your thoughts.
> >
> > Hope your mother is doing well.
> >
> > Regards,
> > - Padma
> >
>