Dear all,

With your support and our continous fight against ALS, we are
featured in the International Alliance of ALS/MND Associations on
the internet.

Please visit this link for the same:
http://www.alsmndalliance.org/links.html

This is a small step for our organisation but an important one.

Please read below, an email from their International Alliance Co-
ordinator, Ms. Corbett.

Best regards,
Gaurav



Dear Gaurav Jain

Thank you for your email.

I have added a link to your site on our page
http://www.alsmndalliance.org/links.html


I have attached information regarding the International Alliance
that you may find interesting. You may want to consider becoming a
member of the International Alliance, so I have also attached
information regarding membership.

The International Alliance does have a member Association in India,
their information is below:

Motor Neurone Disease Association of India

40 Kolagarh Road

Street No 5

Dehradun

UN 248001

India

Contact: Nicky Bhagat
Tel: +91 (135) 2754487
Email: nikinam@...


Good luck with all that you are doing.

Please keep me updated on how things are going and if you need any
further assistance please do not hesitate to contact me.


With kind regards

Donna Corbett

International Alliance Co-ordinator

International Alliance of ALS/MND Associations

United in the worldwide fight against ALS/MND

Tel: +44 1604 611821

Fax: +44 1604 624726

Email: alliance@...



International Alliance Annual Meeting

31st October/1st November 2008

Allied Professionals' Forum

2 November 2008

International Symposium

3-5 November 2008

Birmingham, UK

Further Information: alliance@...




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From: Gaurav Jain [mailto:gjain.80@...]
Sent: 08 May 2008 07:13
To: Alliance Email
Cc: padma.varanasi@...
Subject: Introduction to Living with ALS: India



Hello,



My name is Gaurav Jain and I live in India, Asia.

My Father passed away last month after suffering with ALS for almost
2 years.



In India, we do not have a support system available which can take
care of rare diseases like MND or for that matter other diseases.

The focus in the country is primarily on mass diseases like AIDS,
Cancer, Brain tumours etc.



I started a virtual Organisation by the name " Living with ALS:
India" in October, 07 with a view that providing information and
awareness to people suffering with this disease and their care
takers in India is of utmost importance. The link to the same is:
http://health.groups.yahoo.com/group/ALS_India/

Once we have succeeded in achieving this task, we would want to
start a physical organisation which can help people by providing a
support system to deal with issues pertaining to ALS, especially
things like sourcing medicines, nursing care, equipment sourcing,
emotional support and a support group to express ideas and promote
interaction.

The organisation at its present stage is very small (8 members) but
we are increasing in number which makes me very happy as the
awareness is spreading.



I would request you to kindly acknowledge this organisation from
India in your International Alliance of ALS/MND Associations and
help us in spreading awareness towards this disease and its
consequences.



Let's not forget that unlike US or even developed European
countries, we in India still do not have Medical Insurance companies
or even Government support in providing aids to patients suffering
with ALS.

Like I said in the beginning, it's not as common as AIDS or Cancer
and hence no one cares to think about it.



But there needs to be a start and that's what we are trying to do.



Best regards,

Gaurav Jain