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ALS_India · Living with ALS: India

Group Information

  • Members: 8
  • Category: Support
  • Founded: Oct 1, 2007
  • Language: English
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Description

A platform for people (and caretakers of same)who are living in India and have been diagnosed with ALS. This forum is for PALS (persons with ALS) and CALS (Caretakers of persons with ALS) to communicate with the ALS community immediately, to share information, ideas, support and fellowship.
As we all know that MND/ ALS is a rare disease and India's health infrastructure does not provide any assiatnce vis a vis US or Europe, we want to create awareness among the people regarding this disease and offer help/ support to PALS and CALS in whatever way possible to provide comfort.

All posts sent to this list server are moderated by the manager.

Examples of post content that is appropriate for the list server and WILL be posted:
1) Questions about how to deal with emotional, physical, and social challenges of living with als.
2) Answers to these questions
3) Tips from PALS, CALS, and health professionals
4) Informative ALS or related news articles
5) Info about ALS related websites
6) Personal stories and experiences of PALS and CALS
7) Up to date information on research, drug studies, and advocacy efforts
8)Words of encouragement and inspiration for PALS and CALS going through hard times
9) Occasional (not excessive) quotes and stories that might be inspirational to PALS and CALS

Examples of post content that will NOT be posted to the list server:
1) Posts that have nothing to do with ALS related issues
2) Posts that preach a specific religious dogma in an effort to convert readers
3) Posts that express disagreement with another person's post in a disrespectful manner. If you must express yourself in this manner please do so privately.
4) Jokes (please send those to your friends here privately)
5) Posts that promote discrimination in any form

Most Recent Messages

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Small step of recognition for Living with ALS: India
Dear all, With your support and our continous fight against ALS, we are featured in the International Alliance of ALS/MND Associations on the internet. Please
Posted - Fri May 9, 2008 5:52 am
gauravjain_80
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New file uploaded to ALS_India
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the ALS_India group. File : /info update
Posted - Thu May 8, 2008 8:20 am
ALS_India@yahoogroups...
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New file uploaded to ALS_India
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the ALS_India group. File :
Posted - Wed Apr 23, 2008 11:52 am
ALS_India@yahoogroups...
Send Email Send Email
New file uploaded to ALS_India
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the ALS_India group. File :
Posted - Wed Apr 23, 2008 11:51 am
ALS_India@yahoogroups...
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Problem with speech...you can try this...
Hello all, For all those PALS who are having trouble with talking and are facing continous speech slurring, you can try this. There are a lot of hi tech tools
Posted - Wed Apr 23, 2008 11:50 am
gauravjain_80
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2008 11 2
2007 5 2
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