A platform for people (and caretakers of same)who are living in India and have been diagnosed with Amyotrophic Lateral Sclerosis or ALS. This forum is for PALS (persons with ALS) and CALS (Caretakers of PALS) to communicate with the ALS community immediately to share information, ideas and get support.
As we all know that MND/ ALS is a rare disease and India's health infrastructure does not provide any assistance like US or Europe. Hence, we want to create awareness among the people regarding this disease and offer help/ support to PALS and CALS in whatever way possible and provide comfort.
Members of this group have a lot of information thru their personal incidents or thru their loved ones. So feel free to ask any questions that may have been troubling you regarding this disease.
Only if we help each others, can we expect to help many more in India.

Examples of post content that is appropriate for the list server and WILL be posted:
1) Questions about how to deal with emotional, physical, and social challenges of living with als;Answers to these questions
3) Tips from PALS, CALS, and health professionals
4) Informative ALS or related news articles; Info about ALS related websites
6) Personal stories and experiences of PALS and CALS; Occasional (not excessive) quotes and stories that might be inspirational to PALS and CALS
7) Up to date information on research, drug studies, and advocacy efforts
8)Words of encouragement and inspiration for PALS and CALS going through hard times

Examples of post content that will NOT be posted to the list server:
1) Posts that have nothing to do with ALS related issues
2) Religious posts/ discrimination post
3) Posts that express disagreement with another person's post in a disrespectful manner. If you must express yourself in this manner please do so privately.

We are together in this fight against ALS so let's share information and help each othe