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P.S. You received this message because Amazon.com received
the following message:

Date: Sun, 1 May 2005 19:46:25 -0700
From: "Linda Newland" <OPU@...>
To: <abmd@yahoogroups.com>
Subject: [AIPL] Social Scurity seeking help in New Guidelines for SLI and
Adults

I just received a letter from Social Security stating that they are considering
whether to add a new body system to their listings for evaluating language and
speech disorders in both adults and children who apply for Social Security and
SSI payments based on disability.

On April 13, 2004 they published in the Federal Register and "Advance Notice of
Proposed Rulemaking" (ANPRN) that invited all interested people and
organizations to send them comments and suggestions whether they should
establish new listings for evaluating language and speech disorders, and if so,
suggestions about what new listings should say. (See 70 FR 19351).

The electronic version of this Notice is available in the Federal Register at
www.gpoaccess.gov/fr/inde/html (this is a dead link on my computer?). Enter
19351 (including quotations marks) in the Quick Search Box. It is also
available on their Internet site for SSA, (i.e., Social Security Online) at
http://policy.ssa.gov/pnpublic.nsf/LawsRes also a bad link on computer <sheesh?
Maybe it is just my computer?>

What should you comment on?
a.. Describe listing-level for adults and children with particular kinds of
language and speech disorders?
b.. Consider other impairments that commonly occur together with language and
speech disorders?
c.. Consider impairments that result in language and speech problems?
d.. Incorporate academic and social communication demands on children?
e.. Incorporate criteria relevant to our definition of disability for adults?
In addition to your comments about our regulations, we would also be interested
in any ideas you have about how we may be able to improve our programs for
people who have language and speech disorders, especially e who would like to
work full-time or part-time with supports.

What is the deadline for sending your comments?

We need your comments no later than June 13, 2005

I sorry the links they have listed might not be available at the time, BUT you
can forward your comments or any questions to their staff at: Janet Bendann at
410-965-9118 or Janet.Bendann@... or Jane Deweib at 410-965-9878 @
Jane.Deweib@...

Why did I get this letter? My first support group was TALK (Taking Action
Against Language Disorders for Kids) and we were National and put out a
quarterly newsletter for several years. We are no longer active, but our name
still is listed with many resources although I try to update them when I can.
TALK was one of many national organizations regarding speech and language that
received this notice. All the BIG organizations were there, what is
interesting, is not ONE autism organization made this list, but many other's
that deal with autism as a secondary condition, syndrome or one whatever term is
popular these days connected to speech and language made the list.

If you have an organization or are part of one, here is your chance to comment,
especially from the ASD community. Should they add new language based on what
we know today in 2005 in evaluating Language and speech disorders in both adults
and children who apply for Social Security and SSI payments based on disability
or one with an ASD? Do we need to change the language and regulations?

Just passing this on and I hope you will share this with other's that might be
interested?

Just me.

Linda Newland