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I just received a letter from Social Security stating that they are considering whether to add a new body system to their listings for evaluating language and speech disorders in both adults and children who apply for Social Security and SSI payments based on disability.
On April 13, 2004 they published in the Federal Register and "Advance Notice of Proposed Rulemaking" (ANPRN) that invited all interested people and organizations to send them comments and suggestions whether they should establish new listings for evaluating language and speech disorders, and if so, suggestions about what new listings should say. (See 70 FR 19351).
The electronic version of this Notice is available in the Federal Register at www.gpoaccess.gov/fr/inde/html (this is a dead link on my computer?). Enter 19351 (including quotations marks) in the Quick Search Box. It is also available on their Internet site for SSA, (i.e., Social Security Online) at http://policy.ssa.gov/pnpublic.nsf/LawsRes also a bad link on computer <sheesh? Maybe it is just my computer?>
What should you comment on?
- Describe listing-level for adults and children with particular kinds of language and speech disorders?
- Consider other impairments that commonly occur together with language and speech disorders?
- Consider impairments that result in language and speech problems?
- Incorporate academic and social communication demands on children?
- Incorporate criteria relevant to our definition of disability for adults?
In addition to your comments about our regulations, we would also be interested in any ideas you have about how we may be able to improve our programs for people who have language and speech disorders, especially e who would like to work full-time or part-time with supports.
What is the deadline for sending your comments?
We need your comments no later than June 13, 2005
I sorry the links they have listed might not be available at the time, BUT you can forward your comments or any questions to their staff at: Janet Bendann at 410-965-9118 or Janet.Bendann@... or Jane Deweib at 410-965-9878 @ Jane.Deweib@...
Why did I get this letter? My first support group was TALK (Taking Action Against Language Disorders for Kids) and we were National and put out a quarterly newsletter for several years. We are no longer active, but our name still is listed with many resources although I try to update them when I can. TALK was one of many national organizations regarding speech and language that received this notice. All the BIG organizations were there, what is interesting, is not ONE autism organization made this list, but many other's that deal with autism as a secondary condition, syndrome or one whatever term is popular these days connected to speech and language made the list.
If you have an organization or are part of one, here is your chance to comment, especially from the ASD community. Should they add new language based on what we know today in 2005 in evaluating Language and speech disorders in both adults and children who apply for Social Security and SSI payments based on disability or one with an ASD? Do we need to change the language and regulations?
Just passing this on and I hope you will share this with other's that might be interested?
Just me.
Linda Newland
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