My son, Logan-8 has recently been dx with Aspergers. It is sad and a
relief all in one. I have known something "wasn't right" since he
was about 2 or 3. Now atleast I know what to research to help him.
But needless to say I was also hoping for something more "curable"
They say he is on the "mild" side but still, it is frustrating
knowing what to do. As a nurse there is that part of me that
struggles with the "unknown" of treatments that will work for Logan,
and even if we know for sure if we have the exact diagnosis for him.
I want to take him to the Doctor, put him on the exam table, draw
blood and hear "yes it is positive" or better yet "negative"
Logan hits some of the charagteristics right on-other areas he does
not. I guess this is probably the case for all Asperger's. He is
very interactive with family and friends. Wants relationships with
peers but has none. He does not have the monotone voice or avoid eye
gaze but he just seems "quirky" when dealing with other children. He
does not "fixate" on any one thing. He never throws fits like they
say Asperger children often do. He is quite the opposite.
Accepts "no" and moves on--- Like its "no big deal" as an infant,
now that I think back, he was just kindof "there" He was interactive
but never smiled a whole lot nor cried a whole lot either. It was
like if you wanted to play with him he would entertain the idea but
if you were busy great-- he was content wherever you put him for as
long as you wanted just by himself.
I really dont know why I am writting this email. I guess as a parent
of a child newly diagnosed I have so many quesitons I feel like I am
fighting just to float. Dont know where to start. To top it off
Logan is 8- almost 9 and has told me "I want fixed.. I dont care if I
have to have surgery" this is before he knew he actually had
something called Aspergers. It is agony having your child telling
you he wants "fixed" and you cant find the answers fast enough.
Naturally I tell him he is not broke. We talk about Aspergers with a
positive spin. I tell him it is NEVER a reason not to do anything
but that together we have to find a different or "special" way for
him to do things.
Where he does hit the Aspergers right on is the processing side of
things and this is what I believe frustrates him the most. Knowing
he knows something and cant get it out on paper or even copy words
from the chalk board without it taxing him...He has the low muscle
tone and gets "lost" in space a lot. He is easily fatigued. Also
the recognizing that others dont "like" him at school. I see that he
does not know how to initiate conversation or even have anything in
common with peers. He talks above them like Aspergers children often
do. I am wondering if other Asperger children find it much easier to
interact with adults then other children. Logan can interact with
adults-even teenagers much easier then children.
I am sorry to vent so much. I am just so full of emotions. My
husband understands what is going on but is in the "don't talk about
it" phase so I really feel all alone sometimes
What have people found with the Gluten free diet? I have Logan
scheduled for a complete peptide and food allergy testing in
September. We are really wanting to treat him mostly naturally if
possible and using phamacology only as a last resort.
Also if someone could tell me that their child only fits in some
areas of the characteristics and not fit the "mold" it would be nice
to hear. I know it is the case but like I said it is driving me
crazy.... that maybe we dont have the right diagnosis when I am 90%
sure that we do.
Thanks so much
Logans mom, Karrie