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asperger's and "changes"   Message List  
Reply | Forward Message #3504 of 8554 |
Re: [AIPL] asperger's and "changes"


Hi,

First let me introduce myself...
My name is Amber Perry. I'm in Bend, Oregon, and I was diagnosed with AS
at 21 in 1998. I can honestly say that I'm 26 now and still struggle with
my hygeine. Teeth brushing, bathing, brushing hair. I don't know what it
is. It has to do with the disability, not understanding why appearance is
important for everyday function and to make a good impression for other
people. AS individual will do what's comfortable for them. I think it
takes some coaching and maybe even humiliation (bad I know but true). Hope
this helps.

Amber

>
>
>
>
> hi all...
> i'm the mom of a wonderful 11-year old asperger
> diagnosed son....he is homeschooled, and is either
> with his dad (we are divorced, but remain a close
> family group), or myself most of the time..not a lot
> of "external" stressors..other than just "life"
> 0:)
> he attends sunday school on sunday, and seems to
> enjoy the peer group there...
> a few questions i need some advice on..
> 1. is taking care of hygiene such a big problem
> area with this age in general...he REALLY puts up
> a struggle every time i ask him to shower..(even
> just once a week)!!, and still won't brush his teeth
> on his own at all..he will allow me to brush them
> every other day...(not easily, and only for a few
> seconds)... the shower thing is REALLY getting to be
> bad...in my mind...cause i want him to be clean, not
> smell...look nice (he's a handsome guy) 0:) plus...it's
> hard enough to be "accepted" in a group all cleaned
> up...much less dirty...
> have any of you gone through this problem, and
> do you have any solutions...i fully think it's part
> sensory/part "control" issues at work..but how to
> "unjam" those issues i just am unsure of..
> 2. THIS one's important to me as well..
> have any of you parents of asperger children, OR
> any of the Asperger diagnosed out there gone through
> any "biggie" changes in your lives...and what kinds
> of things help to make getting through those changes
> smoother...make the transitions easier..my son's dad and
> I were divorced when he was 5, now he's 11...we've
> basically still interacted as a family so that my
> son could see his dad...His dad had no where to live,
> so he still lives in the upstairs of my home...
> That way, he spends time with his son...and is saving money
> for a home of some kind...(I make well)..
> This spring I"m going to be selling this home though..my
> neighborhood's getting terrible...and we will
> be moving from the only home my son remembers..
> his dad will be moving with us...for awhile...a year
> or two...then when my son is older, he and his dad
> want to build a place out in the country..
> I will be getting re-married in about 4 years..and
> EVERYONE'S willing to take small baby-steps, and take
> each change slowly..carefully...and with everyone's needs
> in mind...
> Any ideas on how to make change easier...other
> than what i'm doing...one small step at a time? 0:)
> I sure appreciate hearing ideas from others..
> so many people have no clue about asperger's or
> other related disorders...i live in little rock, arkansas, and
> our services here are lacking..as far
> as understanding and qualified doctors go...at least
> understanding and helping asperger children/adults..
> thanks so much for your time... michele
>
>
>
>
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>
> Other queries, email Jim Stewart; zen@...
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Wed Jan 7, 2004 6:11 pm

beachbunny2_...
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Forward
Message #3504 of 8554 |
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hi all... i'm the mom of a wonderful 11-year old asperger diagnosed son....he is homeschooled, and is either with his dad (we are divorced,...
Angelbaby2sweet@...
Send Email
Jan 7, 2004
5:03 pm

Hi, First let me introduce myself... My name is Amber Perry. I'm in Bend, Oregon, and I was diagnosed with AS at 21 in 1998. I can honestly say that I'm 26 now...
newbug@...
beachbunny2_...
Offline Send Email
Jan 7, 2004
6:11 pm

Hi Michele my son is the same age as yours. We had the same problems with hygiene, my son now will take a shower no matter what. I think it did have a lot to...
dianemdecker@...
Send Email
Jan 7, 2004
6:59 pm

Hi Michele, I would like to know how it's going homeschooling your son. I have a 13 yo who is getting absolutely nowhere in school and I'm exhausted trying to...
Susan M. Totman, MVA
tusiet
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Jan 7, 2004
8:11 pm

Hi Susan I have a 12 year old AS son who has been home schooled for several years. Life has gone from stressful to enjoyable for both of us. Schools seem to...
Terry Nelson
terryjane_2000
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Jan 11, 2004
9:03 pm

Oh, one more thing, another reason about not showering or bathing could be if you dont pick up on the smell, you may not know you need to shower, d...
darren981@...
Send Email
Jan 7, 2004
8:21 pm

I never did pick up on it as a kid. I had to rely on routine and the occasional prompt from classmates. I think I was driven by showering being a 'rule' I had...
Jeremy Davey
europaflyer
Offline Send Email
Jan 7, 2004
9:29 pm

I have an 11 yr old son with AS...seems we have the opposite problem..at least as far as bathing goes....he wants to bathe all the time....2 or 3 times a day...
Dawn T
misstydawn
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Jan 7, 2004
9:44 pm

Puberty has a significant impact on boys needing to bath regularly and brush their teeth. I think AS boys develop later so they may fall behind their peers in...
cottrell@...
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Jan 7, 2004
9:51 pm

Michele, Hi, I just got a e-mail from you and a few other people that have kids that have As. I work with a student that is in the 5th grade that has As. I...
jae oxendine
jsjohndeere
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Jan 7, 2004
11:41 pm

I totally understand about the hygiene issue. My 9 year old son will take a bath if I remind him. but I have to say wash your hair, or he won't. The issue I'm...
heekry@...
Send Email
Jan 9, 2004
6:41 pm

Bed wetting has to do with brain development. AS kids simply develop later. Please ask your doctor about a prescription nose spray that can be used at bedtime...
cottrell@...
Send Email
Jan 9, 2004
6:46 pm

Hi, What I suggest (and I even need to do this) is making a list of things he should do in the morning (shower, brush teeth, etc.) and post it somewhere in his...
Amber L. Perry
beachbunny2_...
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Jan 10, 2004
3:22 am

Sorry If that wasn't supposed to be sent privately. I hit the wrong button on accident I think. Amber L. Perry Bend, OR ... From: Amber L. Perry To:...
Amber L. Perry
beachbunny2_...
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Jan 10, 2004
3:23 am

Have you talked to him about the major consequences of not brushing one's teeth? Amber L. Perry Bend, OR ... From: dianemdecker@... To:...
Amber L. Perry
beachbunny2_...
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Jan 10, 2004
3:25 am

Yeah, it's easier for someone else to pick up on your smells than yourself, because you're used to them. It's weird I know. Amber L. Perry Bend, OR ... From:...
Amber L. Perry
beachbunny2_...
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Jan 10, 2004
3:30 am

In a message dated 1/9/2004 11:09:39 AM Pacific Standard Time, ... I talked to the doctor, she said he will out grow the bed wetting....
heekry@...
Send Email
Jan 10, 2004
6:57 pm

That's correct. Unfortunately mine didn't outgrow it until middle school and he was adult sized by then. Pull ups only fit for so long and Depends are ...
cottrell@...
Send Email
Jan 12, 2004
2:49 pm
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