First welcome to march...Its been a long winter and being the first day of march were getting a lot of snow...How many are you getting depress? anyway when you...
I have a 16yo son with spina bifida. He will soon be an adult and I am looking for ideas on how to prepare him for that role. Who better to turn to than those...
Hello,I am a older man with spina bifida...Best thing I could tell you is try to let him do things on his own...since he is only 16 you have many years before...
Anytime you wanna chat or ask me questions feel free. My e-mail addy is lissypops1982@... and my yahoo ID is lissypops1982. I'd be more than happy to...
Hi guys how is everyone? I'm well. I'm interested in finding out something and was hoping someone may be able to help me. Just out of interest sake I wanna...
Hi Melissa; This is a really good question you ask! I've looked through every SB website I could find, and there is not one word about the history of our...
I am 25 yrs old and have never had rods put in. My Dr talked to my parents about it when I was a baby but told them it was too risky and he wouldn't do it. So...
I have small feet as well. I wear between a size 1 and a size 3 depending on the make of the shoe. I can't wear a shoe on my left foot because I'm afraid of...
Cindy, Thanks, yeah i'd say discussing it when you are a baby is way too premature. What is your curve now? Have you discussed it lately? Sara Cindy Walker...
Cindy, 2 things ppl w/ SB need to know- the level of their lession and their scoliosis curve. find that out. what is the reason your dr. gives? Sara Cindy...
Hello! I am new to your group and hope to learn much from you all. Although I don't have spina bifida, my 16yo son does. My reason for joining is to be...
I would go get a second opinion, if I were you, Cindy. I've been experiencing symptoms of Chiari/Syringomyelia lately. My current neurosurgeon doesn't want to...
2 words- second opinion Cindy Walker <cindy24_2000_35444@...> wrote: The Dr says the surgery is just too risky. Sara ChristianQT wrote: Cindy, 2 things...
Gordon I did my Sr. seminar in college on this subject (since I was born with it I decided to write what I know) and according to my research at the time you...
Sara,Why are you pushing her to get rods put in...she told you her doctor said its to risky...Having rods put in you is not that great of of a thing,it can be...
1. i did not push her. 2. i was not the only person to tell her to get a second opinion. last time i went to see my ortho. it was a new guy, i figured i'd...
Sara I don't think of what you said as pushing me to get a second opinion you were just giving me advice which I appreciate. But I don't really want rods. If...
Hi, I have had two sets of rods put in my back as as with any surgery there is always gonna be risks. Do what you feel is right for you. The first set of rods...
Welcome to the group. My name is Melissa. I am 22 and have Spina Bifida. I live in Australia. If you have any questions please don't hesitate to ask. My e-mail...
Thankyou Gordon for your reply. It was very interesting. May I ask which website or wheere you found this information. Thanks. Melissa ... every SB website I...
Hi Melissa; I'm glad you found the information interesting. Egyptology as a whole and Tutankhamen in particular have been of interest to me for many years, and...
Hi Terry; Thank you for your confirmation that this fetal evidence is the oldest documented thus far. I'm wondering if in your research, you came across any...
Hello all, My name is Denise and I have Spina Bifida. Im also a single parent to a loving 3 year old. Looking to meet friends, penpals, or possibly more, if it...
Hi Denise welcome to the group. Hope you meet lots of nice people. My name is Melissa. I'm 22 years old and have Spina Bifida. I live in Australia. I love...