This group is to address the special needs and concerns of people who have, care for, or know someone who has Chiari Malformation(ACM), Tethered Spinal Cord(TSC of the Filum Terminale family including Occult Tight Filum Terminale), and/or, Ehlers Danlos Syndrome(EDS) in an environment that encourages open discussion amd understanding. This site is under continual construction. I will be adding links to publications, educational sites, and support groups as I can. I encourage sharing information (including local medical support for your area) as you have it. If you find links or studies you think might be helpful to the group let me know and I will post them in the Links or Files sections. I also run a sister support group for these conditons for the Pacific NW (Oregon, Washington, and Idaho) of the United States. If you are a patient (family and frinds may join as well) of CM1, EDS, and TCS looking for local support in one of those states please visit the site in the "Related Link" section. We also have a group specifically for the spouses/ signifigant others of trifecta patients. It is specifically to support our support at home and allow them a personal place to ask questions and vent frustrations. Much of the information on this group will be duplicated there for those spouses who want to learn about what we have. The group is "You have what?" the address is: http://health.groups.yahoo.com/group/youhavewhat/ We started in 2005 are growing quickly. Please spread the word about this site to others in our community. Seperately these diseases are hard to understand and treat. With these diseases combined our only hope is to help each other understand, learn, and discover. We are literally the pilgrims of the trifecta.