This is a support group for families and individuals dealing with the challenges of 22q Deletion Syndrome (also know as 22q11 Deletion Syndrome, DiGeorge Syndrome or VCFS). This syndrome affects people in a wide variety of ways and we recognize the need to allow people to connect with and support each other. Therefore, we encourage open, respectful communications on all aspects of this condition.

Our little angel Treva was born with 22q11 DS. Since she acquired vocal cord paralysis, her physical voice may be silenced, but not the voice she inspires us to use.

We invite people to share their research, stories and personal experiences on dealing with 22q11 DS.