This is a support group for families and individuals dealing with the challenges of 22q Deletion Syndrome (also know as 22q11 Deletion Syndrome, DiGeorge Syndrome or VCFS). This syndrome affects people in a wide variety of ways and we recognize the need to allow people to connect with and support each other. Therefore, we encourage open, respectful communications on all aspects of this condition.

Our little angel Treva was born with 22q11 DS. She acquired vocal cord paralysis, her physical voice was silenced for a couple of years, but not the voice she inspired us to use.

Her vocal cords have improved and she speaks, except she has her own "accent". We understand her most of the time. She has come through many challenges and she still works through many. Her determination and fiery spirit still inspire us to share her story and those of other children and their families.

We invite people to share their research, stories and personal experiences on dealing with 22q11 DS.