I know some of you have filled out the survey for me before. But I added another question to it. I am also looking for questions that you might want me to add...
Hi Erin, Ayah doesn't have any behavioral problems, but you can add seizures to the list. They just started this week. :( Thankfully, they're really mild. Her ...
Matthew has major behavioral problems and it is so frustrating! Out of the blue, he cries for no reason at all, throws tantrums and disobeys frequently. He...
Tina----I think we are talking about Olivia too. She is the same exact way. She is horrible at home but fine when other people have her or at speech. She...
Unfortantly the behavior problem seems to come with it. Grace has had prblems since she was little. The biggest problem they do grow and eventully are your...
Daniel (who is 6 now) does have tantrums when he gets thing taken away or when he is told "No". For the most part, they are pretty mild and can be controlled...
Faith also acts out on occasions. When she does it definitely is pronounced with Jana and I. I don't have any other kids but therapist we talk to said that...
Has anyone done baby signs with their kids? I only know a few signs so far, but Ayah seems to be picking them up fairly well. I was even considering full ASL...
I just had to share with everyone that Faith, 4, is in the hospital recovering from her heart surgery and the nurse she has tonight has had one other Jacobsen...
Hi everyone, Boy where do I start with Nick's behaviors. He bites, pinches and hits when he doesn't get his way or we don't understand what he is saying. It is...
we use baby signing time. great videos From: Kristen Haley Sent: Monday, June 08, 2009 11:17 PM To: 11q_disorders@yahoogroups.com Subject: Re: [11q_disorders]...
Brayden and Zachary both have fairly major behavioral issues. And they only have them at home--not at school or with grandma and grandpa, etc. They pinch...
This is what everyone is here for .Vent if you need to.Grace hates thunder.She was up at 1AM because we had a thunder storm.She was still awake at 4. I...
We will be starting Grace on Depakote for anger issues as soon as the heart dr gives the ok. The more the dr looked into it the more it seemed a great fix. ...
Nathan started signing when he was 2. He is now 6 1/2 and stubborn so I have to remind him to use his words. As far as verbal, he is non-verbal and can only...
Hi Kristen. My daughter Bella is 7 and she is finally picking up sign and language. I got the baby signs and it helped me to learn and teach her. Bella has a...
Hi Andi, Ayah is just over 7 months old now. After her diagnosis of epilepsy this past week, I decided for sure that I want us all to learn sign language. Her ...
Hi Kristen, I started learning it last year when Bella was very ill with pneumonia. We have tried teaching her sign since she was 4-6 mos old but Bella had a...
Hi there. Thought I would share this link with everyone. http://www.autism-society.org/site/PageServer?pagename=sensoryfilms AMC opens the sensory friendly...
Hi. My name is Lori. I was just wondering if Lily had any stomach issuses that you started her on the gluten free diet? and are stomach/bowel problems common...
I took Ayah in for another EEG this morning. She started having 2-3 seizures per day and her Keppra hasn't helped. She's not sleeping well, either. This EEG...
... Â Some day this will us. It is hard at times now with Grace. She requires more care now then when little I think. Have we made plans for if she out lives...
Hi there Kristen. Abigail, aged 3, has West Syndrome as well as Jacobsens Syndrome. West Syndrome is the name given to a certain form of infantile spasms. We...
I am saddened to say that I just received the news that Annette Mucker (11q mom of Josh--11q+)passed away a couple of weeks ago. She has been battling cancer...
Tha tis so sad.I will pray for her family .I sure it is very hard for them right now. If you hear of anything they need let us know and we will see what we can...
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