My son, Matthew (10yo) is very small for his age. Weighs 42 lbs and is 42" tall. He also prefers carbs--mac & cheese, mashed potatoes, hamburger, french fries,...
Happy Belated Birthday Grace.... Hope you had a good day... Matthew celebrated his 10th Birthday on 04/29. Â Matthew also had some recent dental work last...
Where they get the strength who knows ,But ,Grace's upper body strength is fierce. She did not really grow till she hit puberty and then took a hugh growing...
Serena is still in the hospital. Today is day number 24 of this stay!! We have found out that she has a T4 cell immuno deficancy disorder (see I knew immuno....
Serena and you are in my familys prayers! Â Â If you learn from it....it is not a mistake. ... From: Erin Rebecca Bross <erinrebecca2002@...> Subject:...
Hope you are getting some rest.It is so hard when your child is sick.  I always hated waiting on test results. The fear of the unknown. We know our kids...
Well now the doctors have really gone and done it this time. They're keeping her till Monday or Tuesday so they can contact a place called Ranken Jordan. This...
Oh my god Erin, You are really going through it right now! I so wish there was something i could do help you through this. Have you tried contacting Dr....
You have the right to say no.Medicaid will pay for a nurse inthe home to help. Once an institution has her they won't let her go. But if you need a break...
Well since Saturday Serena has done way way way better on her oxygen. She has held steady for over 24 hours on 1 L or less of oxygen while keeping her...
The 11q organization has been getting donation checks in the mail twice a month coming from IBM. It looks like they are an employer match donation that come...
I don't know if anyone has heard of these, they are great tattoos you write your child's info on. They stay put until you peel them off and come with a marker...
Hi everyone: I was wondering if anyone on this site lives in the Houston area? Dr. Paul said he thought someone did. My granddaughter, Jade, and her parents...
Erin, I just went to the new site and it looks awesome. I especially like the groupings of articles gathered under resources. Thank you for assembling the...
I know some of you have filled out the survey for me before. But I added another question to it. I am also looking for questions that you might want me to add...
Hi Erin, Ayah doesn't have any behavioral problems, but you can add seizures to the list. They just started this week. :( Thankfully, they're really mild. Her ...
Matthew has major behavioral problems and it is so frustrating! Out of the blue, he cries for no reason at all, throws tantrums and disobeys frequently. He...
Tina----I think we are talking about Olivia too. She is the same exact way. She is horrible at home but fine when other people have her or at speech. She...
Unfortantly the behavior problem seems to come with it. Grace has had prblems since she was little. The biggest problem they do grow and eventully are your...
Daniel (who is 6 now) does have tantrums when he gets thing taken away or when he is told "No". For the most part, they are pretty mild and can be controlled...
Faith also acts out on occasions. When she does it definitely is pronounced with Jana and I. I don't have any other kids but therapist we talk to said that...
Has anyone done baby signs with their kids? I only know a few signs so far, but Ayah seems to be picking them up fairly well. I was even considering full ASL...
I just had to share with everyone that Faith, 4, is in the hospital recovering from her heart surgery and the nurse she has tonight has had one other Jacobsen...
Hi everyone, Boy where do I start with Nick's behaviors. He bites, pinches and hits when he doesn't get his way or we don't understand what he is saying. It is...
we use baby signing time. great videos From: Kristen Haley Sent: Monday, June 08, 2009 11:17 PM To: 11q_disorders@yahoogroups.com Subject: Re: [11q_disorders]...
Brayden and Zachary both have fairly major behavioral issues. And they only have them at home--not at school or with grandma and grandpa, etc. They pinch...
This is what everyone is here for .Vent if you need to.Grace hates thunder.She was up at 1AM because we had a thunder storm.She was still awake at 4. I...
We will be starting Grace on Depakote for anger issues as soon as the heart dr gives the ok. The more the dr looked into it the more it seemed a great fix. ...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
