Hi, I looked for you on Reunion.com, but you weren't there. Please connect with me so we can keep in touch. -Annette Do You Know Annette? YES - Connect with...
I htink it is amazing to look at the photos and see how many of our kids have some red in their hair. Wonder if that gene is attached . Problem is they often...
I hope everyone's new year started off good. Grace is very mad at me this morning again. We have a small layer of ice and I won't let her go to the center on...
yes I have always thought the same thing. I asked my genetics doc and she wasn't sure From: Peggy StClair Sent: Tuesday, January 06, 2009 8:44 AM To:...
Jeremy and I have also wondered about this. :) ________________________________ From: Peggy StClair <thesqaw@...> To: 11q_disorders@yahoogroups.com Sent:...
I know I can't go to town without at least one person commenting on Nathans red hair. They did mention something about it at the conference I went to (not this...
Grace comes by hers honestly as there is Irish in her grandpa's side. But she is the only one of mine to have red hair. I have seen a few 11q- kids without the...
Erik also comes by his naturally - his father and maternal grandmother are redheads. People say hair color comes from their mother's genes - but when they see...
I'm wondering if anyone has an 11Q pamphlet or letter that explains what 11Q is? I may be doing a fundraiser in the spring and would like a brochure to help...
My Laci's hair is just beautifull. My husbands side has red hair but Lacis is a diffrent red. I have also wondered it had something to do with this????? ...
I've wondered too. Serena has red hair too.....and yes she has a major red headed temper problem!!! She's 17 months going on 13 years sometimes....lol. She's...
Hello all. Just a quick update again on Serena.... She's been in the hospital since Jan. 6th. They actually did the sleep study here and guess what....Serena...
Erin, I'm glad that you are starting to win some battles with the doctors. We We went through similar battles to get Zachon O2 and a pulse ox when he was...
Hurray for you Glad they are finally paying attention.I've had to get a little nasty with a few to get my piont across .We are around these kids 24/7 they see...
Hi Erin, So glad to hear positive things are happening for Serena and for you, I have always gone by mothers instinct, Like Peggy says we are with these kids...
Erin - Yeah for the accomplishments your have made with these doctors. A journal is a great idea, just making the time for it. I hope your stress level is...
I just had to share, I found out that red hair is tied to the MCR1 gene and is a gene mutation. So I did some research and found out that this MCR1 gene is on...
January 16, 2009 Dear 11q Families, I hope this letter finds all of you well as we start 2009. I wanted to send you an update on some of our recent research...
WOW!! I knew it took about 3Xs the dose to put her to sleep and they couldn't figure out why she came out of anesthesia so fast after surgery. Also looks like...
WOW!! I knew it took about 3Xs the dose to put her to sleep and they couldn't figure out why she came out of anesthesia so fast after surgery. Also looks like...
Wow Jana--that is cool! I'm impressed that you found that info and made that link! I wonder if any of the 11q researchers know that. It would be interesting...
Grace's hair was carrot red when she was little and has gotten darker and not near a pretty (to me anyway) as she gets older. Peggy ... From: linzee_carroll...
Hi! I'm new, so I'll introduce myself. I'm Kristen, mom to 3-month- old Ayah. She was diagnosed with 11q deletion by coincidence, in a way. A skinny little...
Hello. My daughter is 3 yrs old and she is an 11 q baby. She breastfed for a yr. My daughter didn't suck that hard. Ill get back on here in a bit and give you...
Hi Kristen, I'm new to the group as well (Hello everyone!) My son Matt was diagnosed with 11q at birth. He also had a very low platelet count and has...
Tina and Kristen, Welcome to the group!! I have two boys with JS, ages 10 and 7. As for fear, they are very friendly and have never met a stranger that they...
Hi Tina and Kristen (and fellow group members of course) Â My Dylan is now 7 and has no fear of strangers when out in public he would go home with anyone who...
Hello, and welcome!!! With my daughter Laci (who is 4) it is hit or miss, she is eather very friendly or wouldnt go to you even if you payed her money! When...
Hello, My name is Angela Garcia and my 10 yo JS son, also named Matthew, has absoultly no fear of people at all. Bless his heart, my husband is from a very...
Hello. I have a LOT of questions and I am grateful to whomever created this group. When my son was diagnosed in 2005, it was hard for me to find support...
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