Hi Marisa, I see this has been a while and I am sorry I didn't get you this info earlier, but my daughter Faith Marie was born September 1, 2004 with an 11q...
JEREMY HI. THIS IS SANDY HEBERT. JADE'S GRANDMOTHER. WE MET IN CALIF. AT THE CONVENTION. DO YOU REMEMBER? YOU SENT ME A LETTER THAT WAS MEANT FOR SOMEONE ELSE....
Sandy, I'm not Jeremy (apparently ~laughs~) This is Nathan (the red head) Cato's mom. If you would not mind I would like copies of any of the pics you have...
Hey Everyone :) I just uploaded some pics of Cody in the photo section. I was hoping that some of you that attended the last conference could also upload some...
HI BECKY: I AM SO SORRY. I REALLY DON'T KNOW HOW YOU GOT JEREMY'S LETTER, BUT WITH ME AND THIS COMPUTER--ANYTHING IS POSSIBLE. LOL MY DAUGHTER, NICOLE (JADE'S...
Hey ya Sandy, When you post a letter to the group everyone in the group is able to see it. No worries :) I posted a few pics of Nathan on the groups page. The...
Good News! We have negotiated a contract with the Handerly Resort and Hotel in San Diego for our 2008 conference. It will be held June 25- 29, 2008. I...
Great. thanks for your continued hard work Stell Syretz ... From: linzee_carroll<mailto:linzee_carroll@...> To:...
Syretz Family
syretz@...
Jan 29, 2007 7:57 am
67
Linzee, We are very excited about this and we are hoping and planning on being there. We miss everyone that we met, way back when and we look forward to seeing...
Linzee, We are very excited about this and we are hoping and planning on being there. We miss everyone that we met, way back when and we look forward to seeing...
HI Linzee- The resort looks very nice. It should serve the conference well. I am hoping to be able to come to this meeting-- depends on Courtney's health. ...
Kyauburn1@...
Jan 29, 2007 3:06 pm
70
Hi everyone! I am interested in having this group be a little more active. :) I thought I would start coming up with some questions that people could respond...
... questions ... 11q ... Hey ya Linzee, Well if this just isn't a great idea!!!! My biggest challenge with Nathan right now is his head butting. He head butts...
... 11q ... Hi Linzee, Our son Daniel is almost 4 and the biggest challenge we are having is with speech. Daniel can say a number of words but cannot group ...
... 11q ... I would say the biggest concern we have is the final heart surgery, the Fontan, but the biggest challenge we have with Faith is the eating. She is...
Hi Becky, We are facing the same challenge. As mentioned my son is almost 4 and the head butting started about 6 months ago. At first Daniel would hit himself...
Hi Rick, Congratulations on your son talking at 4 years old :) Cody is 9 and does not speak by mouth at all. It does not help matters though that he does not...
Hi Becky, Cody started head banging many years ago. It has become better over the years meaning the frequency has become less. Cody is now 9 years old. I agree...
I feel like I can relate to most of the challenges. Brayden used to bang his head all the time, but unlike some of the others, he was not doing it for...
Hello Everyone, I would like to ask about the schools your children are in. Nathan will be turning 5 in August. He is non-verbal and it is suggested he goes...
Cody attends a Center school for handicap/behavioral kids. I also teach at this school. We have about 100 students averaging 6-8 students per class room. I...
My daughter is 12 years old. School, for many years was the challenge. She was in inclusion, in special ed, and in a private school. For the last 3 years,...
Gretchenwarren@...
Feb 11, 2007 2:06 am
81
I know the options for school are different in each state. We don't have state schools, instead all special needs classrooms are in the regular public...
I know from my experience that when our special children hit milestones, even if its just holding up their head for a few seconds, it is huge and very...
Faith's (age 2 1/2) most recent milestone first happened about 2 weeks ago when she pulled her self up in her crib on her own. She had been so close for about...
Jeremy, My son Nathan(4 1/2) was 3 when he succesfully starting walking without assistance. He now runs (lol) In the past year after mastering the walking he...
... questions ... 11q ... Hello everyone. I have not been in touch with most of you for a very, very long time and some of you I have yet had the pleasure to...
Angela, I would love to see pictures of Matthew. I remember how similar he and Brayden were at the 2000 conference. We are working on potty training (or at...
i was wondering if anyone has heard of 46,xx,der(22)t(11;22)(q23;13). i know that the 46 is the amount of chromosones and the xx shows shes a girl that is all...
... I found a website that might help you figure out what all these characters represent. It probaby will not make any sense to you yet! Keep in mind that...
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