Hi, I looked for you on Reunion.com, but you weren't there. Please connect with me so we can keep in touch. -Annette Do You Know Annette? YES - Connect with...
These people should be able to help too.If she is on a program for disabled children they should help you transtion to adult services. Know that she can go...
The meeting today was a grueling one at best. And like I thought not much new was discussed. The doctor here still feels like it is most likely Centeral...
Just wanted to wish everyone a happy holiday. I just wanted to remind everyone that wanted bracelets that I am now taking payments for them. They are $2 each....
Serena's heart test came back normal. So that does most likely mean that she has the Hypoventalation. Not good. So on Friday we're having a long term care plan...
We were released on Dec.1st, after 13 days in with viral pneumonia. Now we are back in again!!! She started running a fever of 101.6F (her "normal" temp. is...
Just checking to see if anyone knew how she was doing. Praying for her and Erin. I have contacted some people who should be able to help them with the gas bill...
I HAVE SOME INFO FOR YOU Â IF YOU ARE ALREADY A CLIENT OF ST LOUIS REGIONAL OFFICE FORÂ THE DISABLED CALL KELLY BUTLER IF YOU ARE NOTÂ CONTACT KEITH...
Hi Everyone, still having trouble opening the MP4 file, and was wondering if anyone else had it saved as something else that they could email it to me? Thanks...
  A friend sent this to me and I hope it doesn't offend anyone. But this is how my Grace is . She is a gift and knows love so much more than hate soem days...
My daughter Serena is now 16 months old and once again is in the hospital. She has been in for 10 days now....this time with viral pneumonia. She seems to be...
I pray all of you have a safe and happy Thanksgiving.. My family will b here tomorrow to eat . This gives me one extra day to prepare the feast. Grace will...
Hi does anyone know how to convert the mp4 newspot file from the conference into wma or something similar as my computer won't read the mp4 format. any help...
Just wanted to let you all know that I added Dr. Grossfeld's most recently published paper to the files section. It is a paper on neurocognition. He talked...
 Fathe r & Son. ..A Real- Life Love Story Every once in awhil e we hear a story that' s So beaut iful we are forev er chang ed by it. This is one of those...
===================== Posted through Grouply, the better way to access your Yahoo Groups like this one. http://www.grouply.com/?code=post Today is Chailen's...
Hello how is everyone? Thank you to all that sent me your pics and stories about your angels. Allison and I were thinking about taking donations to sell on...
can a balaced translocation between 11q and 22q cause autistic like trates as well as mental and behavioral issues nick has the balaced translocation of what...
Hi everyone, Hope this is ok to post here... You can see a list of my groups on Grouply at the link below. Maybe you'll find some you want to join. Annette ...
Hello everyone! This is my first post to this group but I have been reading all the info/posts with interest. I have a 9 year old with JS. She also has been...
I am creating a website with all the information about JS for people to read and get help with the syndrome. I would love for some of you to be a part of the...
 Here is a few pictures of her The small ones are age 7 The one in Blue overalls age 12. The others are in her teens. She was born April 22, 1975. Even thou...
Hi everyone, My son Brady is 21 months old. A couple of weeks ago we had an MRI and the results showed that he didn't have as much mylein as he should around...
Hi, I am a special education teacher. I have a new student this year he is seven years old and has Jacobsen syndrome. He is not potty trained,he's non-verbal,...
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