Marisa, Brayden had the head surgery when he was 8 months old. We had to wait until his platelets were at 60,000. And then he had platlets given throughout...
In a message dated 12/27/2006 3:37:29 PM Central Standard Time, linzee_carroll@... writes: I just wanted to wish y'all a happy and HEALTHY new year! ...
HAPPY HOLIDAYS TO YOU GUYS TOO! MISS YOU! CAROLYN AND STELL AND RICH ... From: linzee_carroll<mailto:linzee_carroll@...> To:...
Syretz Family
syretz@...
Dec 28, 2006 1:23 am
53
Good morning everyone and Happy Holiday's. Recently we have noticed that our 3 and a half year old son Daniel has started to act out when frustrated. Daniel...
We can definately relate! My older son Brayden (amlost 8) will still hit his head and roll around on the ground throwing tantrums when he is upset or gets in...
I have been dealing with this problem for many years now with Cody. Although he does his head banging as a self stem, he bites and piniches when he is trying...
Thanks Laura, Because Daniel's speech is so limited, I agree, that some of his actions are a method of communication. The challenge is in separating the...
Hi Linzee, Thanks for your reply. We have not see the pinching yet so now I know what we have to look forward to. :-) As you know each of our kids can be so...
Hi Marisa, I see this has been a while and I am sorry I didn't get you this info earlier, but my daughter Faith Marie was born September 1, 2004 with an 11q...
JEREMY HI. THIS IS SANDY HEBERT. JADE'S GRANDMOTHER. WE MET IN CALIF. AT THE CONVENTION. DO YOU REMEMBER? YOU SENT ME A LETTER THAT WAS MEANT FOR SOMEONE ELSE....
Sandy, I'm not Jeremy (apparently ~laughs~) This is Nathan (the red head) Cato's mom. If you would not mind I would like copies of any of the pics you have...
Hey Everyone :) I just uploaded some pics of Cody in the photo section. I was hoping that some of you that attended the last conference could also upload some...
HI BECKY: I AM SO SORRY. I REALLY DON'T KNOW HOW YOU GOT JEREMY'S LETTER, BUT WITH ME AND THIS COMPUTER--ANYTHING IS POSSIBLE. LOL MY DAUGHTER, NICOLE (JADE'S...
Hey ya Sandy, When you post a letter to the group everyone in the group is able to see it. No worries :) I posted a few pics of Nathan on the groups page. The...
Good News! We have negotiated a contract with the Handerly Resort and Hotel in San Diego for our 2008 conference. It will be held June 25- 29, 2008. I...
Great. thanks for your continued hard work Stell Syretz ... From: linzee_carroll<mailto:linzee_carroll@...> To:...
Syretz Family
syretz@...
Jan 29, 2007 7:57 am
67
Linzee, We are very excited about this and we are hoping and planning on being there. We miss everyone that we met, way back when and we look forward to seeing...
Linzee, We are very excited about this and we are hoping and planning on being there. We miss everyone that we met, way back when and we look forward to seeing...
HI Linzee- The resort looks very nice. It should serve the conference well. I am hoping to be able to come to this meeting-- depends on Courtney's health. ...
Kyauburn1@...
Jan 29, 2007 3:06 pm
70
Hi everyone! I am interested in having this group be a little more active. :) I thought I would start coming up with some questions that people could respond...
... questions ... 11q ... Hey ya Linzee, Well if this just isn't a great idea!!!! My biggest challenge with Nathan right now is his head butting. He head butts...
... 11q ... Hi Linzee, Our son Daniel is almost 4 and the biggest challenge we are having is with speech. Daniel can say a number of words but cannot group ...
... 11q ... I would say the biggest concern we have is the final heart surgery, the Fontan, but the biggest challenge we have with Faith is the eating. She is...
Hi Becky, We are facing the same challenge. As mentioned my son is almost 4 and the head butting started about 6 months ago. At first Daniel would hit himself...
Hi Rick, Congratulations on your son talking at 4 years old :) Cody is 9 and does not speak by mouth at all. It does not help matters though that he does not...
Hi Becky, Cody started head banging many years ago. It has become better over the years meaning the frequency has become less. Cody is now 9 years old. I agree...
I feel like I can relate to most of the challenges. Brayden used to bang his head all the time, but unlike some of the others, he was not doing it for...
Hello Everyone, I would like to ask about the schools your children are in. Nathan will be turning 5 in August. He is non-verbal and it is suggested he goes...
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