Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the 11q_disorders group. File :...
11q_disorders@yahoogr...
Jul 6, 2008 6:56 pm
448
Hi everyone, One of the local news stations in San Diego interviewed Dr. Grossfeld as well as Jacque Martin and her 11q daughter, Heidi Sands about the ...
Linzee, I, along with my family, want to thank you so very much for organizing the conference this year. It was great. It was nice to see everyone we met for...
HEAVEN'S VERY SPECIAL CHILD A MEETING WAS HELD QUITE FAR FROM EARTH "IT'S TIME AGAIN FOR ANOTHER BIRTH" SAID THE ANGELS TO THE LORD ABOVE. HIS PROGRESS MAY...
God sent to me an angel, it had a broken wing. I bent my head and wondered "How could God do such a thing?" When I asked the Father why He sent this child to...
I know i have joined this topic late, but how old is serena? My son sam screamed continuously day and night for about the first 14 months of life, lots of...
Serena will be turning 1 yr. on July 21st! No they haven't given her any pain killers at all. Just baby Tylenol. But this last hospital visit they did give her...
So glad she is better. I have a child living with me , she is exstreme special needs, has seizures when she gets herself so upset. Glad you found something...
Beckie, I am shocked so sad to hear of your loss! Has Nicole been sick or was this unexpected. Our thoughts and prayers are with you and your family. I know...
Beckie and Family, I am so sorry to hear that you loss your Nicole. Our thoughts and prayers are with you during this difficult time. May you find strength in...
I am so sorry for your los.I know that is a dreaded thought with all of us at times May God be withyour family now and help you threw the grief.Know that one...
All our thoughts are with Nicole who is with The Lord, and you her family We are so sorry. All our thoughts, prayers, and most positive vibes are with you in...
Beckie, So sorry to hear of your loss.?You and your family are in our thoughts and prayers.? God has another angel, and little Nicole is at peace. Gretchen...
Gretchenwarren@...
Jul 23, 2008 8:46 pm
464
Sorry to hear about your loss. God bless your family in this time of sorrow! Jeremy & Faith ... From: beckie <trisomy11q@...> To:...
Hello everyone. I just wanted to introduce myself, my name is Michelle and I have a 2 1/2 year old son named Hayden that has an unbalanced translococation of...
... and ... Becky, I am so sorry to hear the news of Nicole's passing. My heart & prayers goes out to you and your family during this difficult time. If there...
I hope you don't mind me joining the group. I have twin boys aged 1 year. One of them - Eddie has Jacobsen Syndrome, the other - Robbie is fine. Eddie also...
I hope this gets to you.I tryed earlier and it cam eback I am the mother of Grace who is 33 and is 11q- 23.3 She has had alot of problems over the years mostly...
... Michelle ... Hello, I'm Sue the grandmamma of Chailen, she had open heart surgery in June of this year, she is doing so much better she is now holding her ...
... Robbie is ... year. ... to ... develop. He ... everywhere ... him! ... My granddaughter Chailen is 8 months old and does not sit or crawl she does roll...
Debbie, Welcome! I have found some of the best information from other parents. Faith (age 3, almost 4) also has hypoplastic left heart and is stage 2 Norwood...
Welcome to the group. ... From: Peggy St.Clair <thesqaw@...> Subject: Re: [11q_disorders] Hello! To: 11q_disorders@yahoogroups.com Date: Sunday, July 27,...
Welcome to the group...my daughter Caitlyn is almost 13 and has JS. She is hypotonic (less tension in muscle tone) and could not sit up at 1, did not walk...
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