Hello all :) The trip to Maryland - NIH was a great informational trip. I came back feeling like the smartest mom on earth! This is where they are at in the...
Laura- Fantastic! The best thing a parent can do is learn as much as possible. If you don't know, you can't help. I'm glad they treated Cody well. It...
Kyauburn1@...
Nov 20, 2006 2:14 pm
44
Hi.....my name is Marisa Feeley. I live in Dacula, GA with my husband and 3 boys. My youngest son, Noah, was born on March 27 06. He is 8 months old now. He...
Hi Marisa, My son Daniel is now 3 and a half years old. He was born with trigonocephaly and we had the condition surgically corrected when he was 6 months old....
Hi Rick Thank you for your reply. Are you from this area? I was wondering who did the surgery. You mention that surgery was not an option. This is something I...
Hi Marisa, I live in the Detroit area in Michigan. Daniel's surgery was performed by Dr Roselle at Children's Hospital in Detroit. She is the head of the ...
Hello Marisa- I'm Sarah and my daughter is a Jacobsen Child. I wanted to put my 2 cents worth in this conversation due to the platelet issue. Have the...
Kyauburn1@...
Nov 30, 2006 12:17 am
49
Marisa, Brayden had the head surgery when he was 8 months old. We had to wait until his platelets were at 60,000. And then he had platlets given throughout...
In a message dated 12/27/2006 3:37:29 PM Central Standard Time, linzee_carroll@... writes: I just wanted to wish y'all a happy and HEALTHY new year! ...
HAPPY HOLIDAYS TO YOU GUYS TOO! MISS YOU! CAROLYN AND STELL AND RICH ... From: linzee_carroll<mailto:linzee_carroll@...> To:...
Syretz Family
syretz@...
Dec 28, 2006 1:23 am
53
Good morning everyone and Happy Holiday's. Recently we have noticed that our 3 and a half year old son Daniel has started to act out when frustrated. Daniel...
We can definately relate! My older son Brayden (amlost 8) will still hit his head and roll around on the ground throwing tantrums when he is upset or gets in...
I have been dealing with this problem for many years now with Cody. Although he does his head banging as a self stem, he bites and piniches when he is trying...
Thanks Laura, Because Daniel's speech is so limited, I agree, that some of his actions are a method of communication. The challenge is in separating the...
Hi Linzee, Thanks for your reply. We have not see the pinching yet so now I know what we have to look forward to. :-) As you know each of our kids can be so...
Hi Marisa, I see this has been a while and I am sorry I didn't get you this info earlier, but my daughter Faith Marie was born September 1, 2004 with an 11q...
JEREMY HI. THIS IS SANDY HEBERT. JADE'S GRANDMOTHER. WE MET IN CALIF. AT THE CONVENTION. DO YOU REMEMBER? YOU SENT ME A LETTER THAT WAS MEANT FOR SOMEONE ELSE....
Sandy, I'm not Jeremy (apparently ~laughs~) This is Nathan (the red head) Cato's mom. If you would not mind I would like copies of any of the pics you have...
Hey Everyone :) I just uploaded some pics of Cody in the photo section. I was hoping that some of you that attended the last conference could also upload some...
HI BECKY: I AM SO SORRY. I REALLY DON'T KNOW HOW YOU GOT JEREMY'S LETTER, BUT WITH ME AND THIS COMPUTER--ANYTHING IS POSSIBLE. LOL MY DAUGHTER, NICOLE (JADE'S...
Hey ya Sandy, When you post a letter to the group everyone in the group is able to see it. No worries :) I posted a few pics of Nathan on the groups page. The...
Good News! We have negotiated a contract with the Handerly Resort and Hotel in San Diego for our 2008 conference. It will be held June 25- 29, 2008. I...
Great. thanks for your continued hard work Stell Syretz ... From: linzee_carroll<mailto:linzee_carroll@...> To:...
Syretz Family
syretz@...
Jan 29, 2007 7:57 am
67
Linzee, We are very excited about this and we are hoping and planning on being there. We miss everyone that we met, way back when and we look forward to seeing...
Linzee, We are very excited about this and we are hoping and planning on being there. We miss everyone that we met, way back when and we look forward to seeing...
HI Linzee- The resort looks very nice. It should serve the conference well. I am hoping to be able to come to this meeting-- depends on Courtney's health. ...
Kyauburn1@...
Jan 29, 2007 3:06 pm
70
Hi everyone! I am interested in having this group be a little more active. :) I thought I would start coming up with some questions that people could respond...
... questions ... 11q ... Hey ya Linzee, Well if this just isn't a great idea!!!! My biggest challenge with Nathan right now is his head butting. He head butts...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
