Hello. My name is Jenna and I am doing a presentation for Midland High School on Partial Trisomy 11q duplication. My cousin Joshua Mucker has this diagnoisis...
Hi, Nette. I hope everything is fine with you and your family. We are going to the conference, i wish see you there...God bless you....Alessandra. Nette M...
Hi everyone, I just found out the my beautiful son Jack (turning 4 May 5th) has JS. I wanted to join this group for support and whatever else. We are going...
Hi Darlene, My son Daniel is going to be 5 in May. Danny also has fine motor skill issues and a speech delay in addition to some feeding issues. Welcome to the...
Welcome Darlene. I have a daughter Faith who will be 4 in September. We were diagnosed in utero as she also has Hypoplastic Left Heart. She also has a speech...
Hi Darlene, My son Nathan will be 6 in August. He was diagnosed at age 2 with 11Q- interstatial. He has a speech delay and we worked forever on his walking....
Hi Darlene My Name is Marie and my son Dylan is 6 and has JS we are also going to the conference in San Diego (providing fundraising goes well as we are coming...
Darlene, Welcome to the group. I have 2 boys (ages 9 and 6) who both have 11q deletions (and also 12p duplications--they are 11q-, 12p+). They have fairly...
Hello Darlene - welcome to the group! I am the mom of Joshua. He just turned 8 yesterday! He is Partial Trisomy 11q duplication on the #14. I know that the...
Happy Birhtday to Joshue! Thank you for welcoming us. You may be mixing us up with another family just because we are coming to the conference for sure and...
Darlene, I have a 13- year-old with 11Q-.? I was given early advice by another parent of a Jacobsen child to seek Speech therapy early.? We started around age...
Gretchenwarren@...
Apr 14, 2008 1:00 am
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Gretchen, Thank you so much for the advise and thanks to all off the wonderful parents that have been e mailing me. I am so touched and grateful. Jack is...
Hi Darlene, Welcome!!! We have a daughter, Lillian, who is 10. She has an interstitial deletion (11q-). Where do you live??? I'm an overly aggressive Mo when...
Thanks Lisa! Josh has a great number 8! We took him to the arcade. He had cake with grandma and grandpa. I am doing okay. Good days and bad days. Look...
Hi Lisa, Thank you for all the information. I am working very hard to be sure Jack gets what he needs as well as my older son James who will be starting...
Well we turned 33 today. Yes we have some health issues that may be due to her spina bifida too. But as always she is a fighter. I was so pleased to find this...
Hello all, It is with deep regret that Cody and I will not be attending the conference. With all the budget cuts and people locking their pocket books up so...
Laura, We'll definately miss you and Cody! Have you tried contacting the Florida Developmental Disabilities Council? They may have Grants to send families to...
Laura, Unfortuantly I am in the same boat as you. An even, as if Linzee suggested, I where to obtain funding through a state funded it would barely cover the...
Laura and Linzee, I definently understand about not being able to attend the conference. My daughter and I are also unable to attend the conference due to lack...
LINZEE, HI. THE NUMBER YOU GAVE US TO CALL FOR RESERVATIONS AT THE HANDERLY-- I CAN'T SEEM TO GET THEM TO CALL ME BACK. I HAVE CALLED 3 TIMES ALREADY. DO...
Hi Peggy, It's good to hear from you, and WOW; Grace is 33!!!! It was just yesterday we came to San Diego for the first time and met you guys. How time...
Hi Sandy, For some reason the hotel gave us the banquet manager's phone number for reservations by mistake. The actual reservations number is 800- 676-6567. ...
Erin, what part of Missouri are you in ? I am 30 miles form the Missouri border in North Central Arkansas. Did the storm cause you any trouble last night?Sure...
Erin, What part of Missouri do you live in? I live in Southeast Missouri. Becky On Wed, 4/23/08, erin bross <erinrebecca2002@...> wrote: From: erin bross...
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