Hi Nette, My name is Cesar and I'm Isabella's father. My wife and I would love to continue corresponding with you because, as you said, there's only a few of...
Hi everyone, We have a (very) preliminary agenda put together for the 2008 conference. Things could change and not all speakers are confirmed yet, but I...
Hi, Linzee, I don't see it in the message below. And I checked the website but can't find it either. What are the dates of the dates of hte 2008 conference? ...
LAUREN CLARK
Lauren.Clark@...
Mar 2, 2008 11:21 pm
267
Sorry--the conference is June 25th-29th,2008. it will be held at the Handlery Resort and Hotel in San Diego, CA. Feel free to contact me with any questions. ...
One other thing--technically the conference activities will end the evening of the 28th, but I have it listed as the 25th to the 29th everywhere because that...
Hi linzee, I am from Guatemala my daugter Daniela she just turn 5,I have email you before. I am atending the conference in june. But I like to know for the...
Gabriela, I am excited that you are going to be able to come. We prefer that you send in registration forms ahead of time including payment, but I understand...
Linzee, Thanks for the info. Please send me the email of Dr. Grossfeld so I can get the information and know what they will do. And I will try to send the...
It seems that the phone number that we were given to make reservations for the hotel is actually the direct line of one of the event managers and not the...
I will not be able to attend the conference this year, I am interested in the music therapy and how it works though. Does anyones children particapate in this...
Hello all, the reason why I am writing you, is because my daughter Gabrielle which is now 9 yrs old with 11q 23.3 seem to have a kidney reflux, sometimes she...
Hi, my daughter Daniela she just turn 5. On January she had a surgery in the ureter, becuase she had kidney reflux, she constantly had urinary infections. So...
I was just wondering how the parants whos children had skull surgeries, what there impressions were on how it affected their childrens developement....
Jeremy, My son Daniel who is going to be 5 next month had craniosynostosis / trigonocephally at birth. The suture that needed to be opened was in the center of...
Jeremy, My son Daniel who is going to be 5 next month had craniosynostosis / trigonocephally at birth. The suture that needed to be opened was in the center of...
Rick, Sounds like Daniel had the same suture that closed and surgery that Faith had. It is our understanding that when the sutures are reopened that the area...
Jeremy, Daniel had / has the horizontal ridge exactly as you described as well as the dimples around the temples. We thought that the horzontal ridge was due...
Yes, Daniel wore a helmet for 6 months after the surgery to stabalize his skull as it was healing. RP ... surgery for some reason? ... Faith had. ... area is...
Ms. Reckless - Joshua is almost 8 and is an 11q duplication. He has music therapy 2 times a week at school and it is amazing to watch the change in his...
Hi Cesar! I was so excited to receive your email. I am sorry it has taken so long to get back to you. I was diagnosed with renal cell carcinoma in Feb and had...
Hi Linzee just wondering if since we are coming from australia would it be okay to post (or email) our registration and pay at the conference? Kind Regards ...
That would be just fine. If you want to just email the registration form you can email it to 11qusa@... and just make a note that you will pay when you...
Hi Linzee! as i was reading my emails I realized I never received a registration form for the conference. I do not have a printer handy right now - is it...
HI all. My mom took the time to type out the email below. I dont have the energy right now,but wanted to be sure you were updated. If i missed/dup any...
When Alexandra started speech therapy and saw doctor Riski in 2006 they mentioned that Alex seem to be showing signs of Apraxia but then we got her 11q24...
Hi Dalia, I hope you continue with the speech therapy, because the therapists are the ones who can help you find a way to communicate. We started with sign...
Annette, I hope you are doing well since your surgery. Sorry to hear about all of this, but our thoughts & prayers are with you and your family. I was excited...
Thank you Lisa. Dalia Lisa Worden <lworden31@...> wrote: Hi Dalia, I hope you continue with the speech therapy, because the therapists are the ones who...
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