Hi, there doesn't seem to be any info about trisomy, only jacobsons syndome, are there any other trisomy parents out there? my son is 17 with trisomy 11q as...
Regarding the Cri Du Chat Syndrome-- I found a website for a support group. I'm not sure if you are aware of this group. It is _www.fivepminus.org_ ...
Kyauburn1@...
Dec 30, 2007 8:11 pm
187
I was wondering if any of the older girls have/had problems w/periods, etc. and how parents approached the subject. I'm not sure what Lillian will/ won't...
I'm the Grandmother to Chailen she is a JS baby. She will be six wks. old Tue. Jan. 1st. She will be coming home for the first time tomorrow ths 31st of Dec....
My daughter , Courtney, has entered the great stage of puberty. She is 16. She started her period a few years ago but her health became so poor that they...
Kyauburn1@...
Dec 31, 2007 1:44 am
191
I am new here. My name is Dalia and my daughter Alexandra turns 4 on the 8th of next month. She has the 11q24 syndrome. If anybody is in or near Georgia please...
Lisa, I can not speak for girls but you have asked a good question regarding puberty... Cody is only 10 but for the past year he has had the worst BO under his...
Hi Dalia, Where are you in GA? We are in Woodstock, north of Atlanta. I have two boys with JS (ages 8 and 6). Thier breakpoints are at 23.3, but I'm sure...
We have several families that have trisomy 11q children that are a part of the 11q Research and Resource Group. I'm not sure if any are on this discussion...
Our son just turned 16 and had the same problem. If you haven't already done so you might want to try Secret Clinical Strength deodorant. We put it on Jamie...
Re: [11q_disorders] PubertyThank you Jay for the advice :) I am currently using Tag and so far is doing the trick. Daily baths are required and then tag along...
Linzee I used to live in Woodstock! Until 4 yrs ago when I divorced the girls' dad. He still lives there. I live in Gainesville now. May be one day we can meet...
Morgan is 13 and hasn't started. I was told to look for breast buds first. Also, because many of our children are shorter, a bone age scan may be ...
Gretchenwarren@...
Jan 1, 2008 2:16 am
201
Thanks Linzee, I would like to find out more about 11q, I know all about cri du chat, and just wonder if some of his features are to do with 11q, or are they...
I hope everyone had a Merry Christmas and has a great new year. I'm excited to see everyone this summer in San Diego for the conference! Registration forms...
Hey Dalia, We are in Clermont FL, about 30 minutes from Kissimmee! You will have to let us know if you come visit! Jana/Jeremy/Faith :) ... From: Dalia S....
My brother's best friend lives in Clairmont! I will let you all know. Dalia Jana Wells <janabananablue@...> wrote: Hey Dalia, We are in Clermont FL,...
... Does your son have a unbalanced translocation of 5p-/11q+????? If so, my daughter also has 5p-/11q+. I would love to hear about your son!!! Stefanie...
Hi Ladies Alexandra has been potty training for the past year and she still goes on her pull up, finally lately she comes to me and tells me when she is dirty...
I am on this list because I have 3 grandsons with 11q deletion. But I also have a granddaughter with 2q deletion and that is what I am writing about...Puberty...
I don't know much, but we did meet families whose children had cataracts at the last conference. Vision problems in general seem very, very common. I hadn't...
My son Daniel (11q 24 to ter) is almost 5 and his molars (top and bottom) did not erupt until this past year. He was however on a soft food diet until this...
Thanks for the messages about 11Q trisomy. has anyone posted a picture of a trisomy child on here? I havent seen any pictures of kids who only have trisomy11...
Dalia: Hi, my name is Sandy and I have a granddaughter, Jade (3 yr) with J.S.. We started potty training her when she turned 2. I took a poster board and cut...
Thanks for the info. everyone!!! I will definiteley talk to our Dr. about the bone scan, etc.Lily was also late with her baby teeth, but hasn't been late with...
Congratulations, and welcome!!! I don't think any of us knew aboutJS either until after our kids were diagnosed. You were blessed to find out before...
I have been working with Cody for many years now with potty training. He is now 10. This past summer I finally learned that sitting him on the potty backwards...
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