Im in Maryland. _____ From: 11q_disorders@yahoogroups.com [mailto:11q_disorders@yahoogroups.com] On Behalf Of Syretz Family Sent: Friday, August 31, 2007 9:56...
Jeremy, Unfortunately the balm is not over the counter and is quite pricey...here is cost $20 for a 6 ounce tube and is not covered by my insurance. BUT it is...
I am actually working on putting together a new one that includes 501 c3 status and is more general (the ones I used last time were more person talking about...
Hi Linzee- When you put together the "general" donation letter, could you forward it to me and Beth Kotecki? We were just talking about a donation letter. ...
Kyauburn1@...
Sep 2, 2007 3:10 pm
175
In a message dated 9/1/2007 8:18:46 PM Central Daylight Time, linzee_carroll@... writes: I am actually working on putting together a new one that...
How exciting! That was a very cute picture, but it wouldn't post in the message area. Will you post it in the photo area so everyone can have a chance to see...
JANA, THAT IS A SWEET PICTURE OF FAITH. CAN YOU BELIEVE HOW FAST THEY GROW UP? LOOKS LIKE SHE IS DOING WELL. JADE MADE 3 AUG. 26TH. SANDY (JADE"S GRANDMOTHER)...
Has anyone had their little ones get the RSV shot synegis? Sydney's doctor has recommended her for it. She is 15 months old. We just found out she will get...
Stephanie, Both of my boys had the RSV shots. Brayden actually had them for several years because he had so many respiratory problems. Luckily, my insurance...
Stephanie, Hazel did get this shot in the hospital--the doctors highly recommended it. They told us that it was recommended every month during RSV season for...
How much does she weigh? I do know they are about $1000+ per shot and Faith needed 2 a month when she got older and weighed approx. 15 pounds. I did have to...
Stephanie, Faith, now 3, also had the synegis shot for 2 years. In Florida it is basically year round. But our insurance covered it. It is a preventative...
Thanks Linzee and Kerry for the information. Sydney was full term and luckily we haven't had any respiratory issues yet so I wasn't sure if it was necessary....
Hi, there doesn't seem to be any info about trisomy, only jacobsons syndome, are there any other trisomy parents out there? my son is 17 with trisomy 11q as...
Regarding the Cri Du Chat Syndrome-- I found a website for a support group. I'm not sure if you are aware of this group. It is _www.fivepminus.org_ ...
Kyauburn1@...
Dec 30, 2007 8:11 pm
187
I was wondering if any of the older girls have/had problems w/periods, etc. and how parents approached the subject. I'm not sure what Lillian will/ won't...
I'm the Grandmother to Chailen she is a JS baby. She will be six wks. old Tue. Jan. 1st. She will be coming home for the first time tomorrow ths 31st of Dec....
My daughter , Courtney, has entered the great stage of puberty. She is 16. She started her period a few years ago but her health became so poor that they...
Kyauburn1@...
Dec 31, 2007 1:44 am
191
I am new here. My name is Dalia and my daughter Alexandra turns 4 on the 8th of next month. She has the 11q24 syndrome. If anybody is in or near Georgia please...
Lisa, I can not speak for girls but you have asked a good question regarding puberty... Cody is only 10 but for the past year he has had the worst BO under his...
Hi Dalia, Where are you in GA? We are in Woodstock, north of Atlanta. I have two boys with JS (ages 8 and 6). Thier breakpoints are at 23.3, but I'm sure...
We have several families that have trisomy 11q children that are a part of the 11q Research and Resource Group. I'm not sure if any are on this discussion...
Our son just turned 16 and had the same problem. If you haven't already done so you might want to try Secret Clinical Strength deodorant. We put it on Jamie...
Re: [11q_disorders] PubertyThank you Jay for the advice :) I am currently using Tag and so far is doing the trick. Daily baths are required and then tag along...
Linzee I used to live in Woodstock! Until 4 yrs ago when I divorced the girls' dad. He still lives there. I live in Gainesville now. May be one day we can meet...
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