I know some of you have filled out the survey for me before. But I added another
question to it. I am also looking for questions that you might want me to add to
the survey also. I moved the website to another host. If you have not done the
survey yet and want to here are the questions.
-How old is your Jacobsen's Syndrome Child now?
-Does your child have any other deletions or duplications?
-When were they diagnosed with Jacobsen's Syndrome?
-What are some of the medical problems your child has?
-Any surgeries done?
-What are some learning disabilities your child has?
-What were some of the complications at birth?
-How early was your child born? weight?
-Length of stay in hospital?
NEW QUESTION:
-Any Behavioral Problems?
You can just send me the answer to the new question and I will add it to the
survey you already sent.
Also i just added 2 more of Dr. Grossfeld's papers to the site. Its under
resources and its the last 2 buttons on the page.
Also here is the new sites address. Im trying to get it shortened. if anyone has
anything else that they want me to add let me know.
http://jacobsenssyndromeawareness.moonfruit.com
Erin