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Biggest Challenge   Message List  
Reply | Forward Message #81 of 975 |
Re: Biggest Challenge

I know the options for school are different in each state. We don't
have state schools, instead all special needs classrooms are in the
regular public schools. I have really liked it for my boys. They
have small classes (4-6 kids). I really like that they get to be
around their normally functioning peers. They go to music, art,
lunch, and PE with their the regular peers that are their same age
and thus get to be around speaking models which is something very
important to me. I also agree that you need to make sure that he
gets into a class with higher functioning peers. My kids have made
the most progress the years when they have been with higher
functioning kids. We had to fight to get Brayden's placement
changed this past year because he was close to the highest
functioing in his class and I didn't feel like he had enough
speaking models. The school was very accomodating (so it wasn't
really much of a fight)and put him in a class where he is the lowest
functioning. He definately makes more progress even though a lot of
what the class does is above his head--you never know what he is
actually picking up and learning.
--- In 11q_disorders@yahoogroups.com, Ms Reckless <msreckless_1@...>
wrote:
>
> Hello Everyone,
> I would like to ask about the schools your children are in.
Nathan will be turning 5 in August. He is non-verbal and it is
suggested he goes in the "state school" which is a modified school
for children with special needs. My question is what kind of schools
do other families place thier children in to help them excell. I
know public school is out of the question as of yet but would like
input as far as which direction to proceed. Private school, state
school, home school, .....??????
>
> Laura <lccw@...> wrote:
> Hi Rick,
> Congratulations on your son talking at 4 years old :) Cody is 9
and
> does not speak by mouth at all. It does not help matters though
that
> he does not eat by mouth and he is also moderately deaf. I am
doing
> every thing that NIH recommended to us when we visited up there in
> Oct.. We are working with Cody eating, it is going very slow
though
> but it is a challenge worth fighting! Also I have requested that
the
> school get an amplification system put into his class room. Cody
> refuses to wear his hearing aids so he needs the system in his
class
> room to progress. That is a fight that I demand that I win!
> The good news for Cody is you can sign any song to him such as
ABC's,
> itsy bitsy spider and the list goes on and he can sing the song
(with
> out words) to the tune. It really is amazing, you really can tell
> what he is signing :)
> I like the idea that you are moving him to a school that is more
> challenging for him. I have noticed with Cody that he has
progressed
> so much since he was put into a higher functioning class room. I
feel
> that our kids thrive on doing their best and getting that praise
from
> the adults in their life. You might want to ask for an
amplification
> system. Not only will it help your child but other kids in the
class
> room as well. Either way, I think you are on the right track. I
think
> as parents we all cry to hear our child speak to us. I have faith
> that someday Cody is going to start talking, and let me tell you
he
> has years of many things to say to me...LOL!
> Laura W.
>
>
>
>
>
>
> If you learn from it....it is not a mistake.
>
>
>
> ---------------------------------
> Food fight? Enjoy some healthy debate
> in the Yahoo! Answers Food & Drink Q&A.
>





Sun Feb 11, 2007 2:14 am

linzee_carroll
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Message #81 of 975 |
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Hi everyone! I am interested in having this group be a little more active. :) I thought I would start coming up with some questions that people could respond...
linzee_carroll
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Feb 8, 2007
8:21 pm

... questions ... 11q ... Hey ya Linzee, Well if this just isn't a great idea!!!! My biggest challenge with Nathan right now is his head butting. He head butts...
msreckless_1
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Feb 9, 2007
2:20 pm

Hi Becky, We are facing the same challenge. As mentioned my son is almost 4 and the head butting started about 6 months ago. At first Daniel would hit himself...
Rick Poll
jldpoll
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Feb 9, 2007
3:17 pm

Hi Becky, Cody started head banging many years ago. It has become better over the years meaning the frequency has become less. Cody is now 9 years old. I agree...
Laura
lccw
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Feb 10, 2007
2:34 pm

... 11q ... Hi Linzee, Our son Daniel is almost 4 and the biggest challenge we are having is with speech. Daniel can say a number of words but cannot group ...
jldpoll
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Feb 9, 2007
2:22 pm

Hi Rick, Congratulations on your son talking at 4 years old :) Cody is 9 and does not speak by mouth at all. It does not help matters though that he does not...
Laura
lccw
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Feb 10, 2007
2:25 pm

Hello Everyone, I would like to ask about the schools your children are in. Nathan will be turning 5 in August. He is non-verbal and it is suggested he goes...
Ms Reckless
msreckless_1
Online Now Send Email
Feb 11, 2007
12:18 am

I know the options for school are different in each state. We don't have state schools, instead all special needs classrooms are in the regular public...
linzee_carroll
Offline Send Email
Feb 11, 2007
2:14 am

... 11q ... I would say the biggest concern we have is the final heart surgery, the Fontan, but the biggest challenge we have with Faith is the eating. She is...
dad_11q
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Feb 9, 2007
2:23 pm

I feel like I can relate to most of the challenges. Brayden used to bang his head all the time, but unlike some of the others, he was not doing it for...
linzee_carroll
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Feb 10, 2007
4:30 pm

Cody attends a Center school for handicap/behavioral kids. I also teach at this school. We have about 100 students averaging 6-8 students per class room. I...
LAURA WAIT
lccw
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Feb 11, 2007
2:05 am

My daughter is 12 years old. School, for many years was the challenge. She was in inclusion, in special ed, and in a private school. For the last 3 years,...
Gretchenwarren@...
Send Email
Feb 11, 2007
2:06 am

... questions ... 11q ... Hello everyone. I have not been in touch with most of you for a very, very long time and some of you I have yet had the pleasure to...
angelag39
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Feb 21, 2007
3:06 am

Angela, I would love to see pictures of Matthew. I remember how similar he and Brayden were at the 2000 conference. We are working on potty training (or at...
linzee_carroll
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Feb 21, 2007
1:48 pm

Linzee, I turn on the bath water while he sits there on the big potty. I have it going pretty strong so that he hears the water. Nature just seems to flow, if...
angelag39
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Feb 23, 2007
1:58 pm

Linzee, One other challenge we are facing is drooling. Daniel is almost 4 and he drools excessively. His shirts stay dry for about ½ an hour and then the...
Rick Poll
jldpoll
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Feb 23, 2007
2:45 pm

Rick, Drooling has also been a big problem for us. The soaking wet shirts sounds very familiar. Brayden drools because he chews on anything and everything...
linzee_carroll
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Feb 23, 2007
3:02 pm

Thanks Linzee, I had heard of the people putting things on their children's fingernails to make them stop biting their nails but I thought this was a home...
Rick Poll
jldpoll
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Feb 23, 2007
3:48 pm

high, Just wanted to share my thoughts on the drooling. Nathan used to drool really bad. His developemental therapist worked on his swallowing and it helped...
Ms Reckless
msreckless_1
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Feb 24, 2007
9:59 pm

Nathan's mom: Thanks for your input. Daniel has not seen a PT or OT in about a year and this may be something that we will need to address with them. Thanks...
Rick Poll
jldpoll
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Feb 26, 2007
7:08 pm

... problem. I notice that Matthew drools more when he is anxious, then at other times. For example, he does not drool as much, as if we are out at a store,...
angelag39
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Feb 27, 2007
2:12 am

ANGELA: HI. THIS IS SANDY, JADE'S GRANDMOTHER. HAVE YOU OR ANYONE ELSE OUT THERE EVER THOUGHT ABOUT TEACHING YOUR CHILD TO SIGN.?. I GOT DVD'S AND A BOOK ...
SANDYCST1@...
sandy.jade
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Feb 26, 2007
1:19 pm

I have to agree. Nathan started learning sign when he was 2. I find it easier to communicate with him and he dosn't seem to get as frustrated because he can...
Ms Reckless
msreckless_1
Online Now Send Email
Feb 27, 2007
2:08 am

Yes, initially when he was in the early childhood intervention program, they would sign with him and also teach us to sign with him. He would sign for more,...
Angela Garcia
angelag39
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Feb 27, 2007
2:11 am
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