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Biggest Challenge   Message List  
Reply | Forward Message #74 of 976 |
RE: [11q_disorders] Re: Biggest Challenge

Hi Becky,

 

We are facing the same challenge. As mentioned my son is almost 4 and the head butting started about 6 months ago. At first Daniel would hit himself in the head or the mouth but then he started getting down on his hands and knees and pounding his head on the floor. When this started, I was very concerned (He had reconstructive skull surgery when he was 6 months old) and then we started to pay more attention to it. Here is what we noticed and what we have tried:

When Daniel would get frustrated, he would bang his head on the ground. The funny thing was that if he was banging it on the carpet he would bounce it pretty good however, if he was banging it on the hardwood, he would be quite a bit more careful.

If we addressed it by telling him to stop, he would keep going. (for 20 to 30 seconds)

If we ignored it he would bang and then look at us and then bang and then stop and go on with whatever he was doing.

Either way, he still banged, but for a little less if we ignored him.

Ignoring him seems to have lessened the frequency of the occurrences.

Now that he has slowed down a bit, my wife has begun another technique. When she sees Daniel bouncing his head, she makes goofy sounds to the beat, like “Boing, Boing, Boing” and what we have seen is that Daniel will stop, smile and then go on.

At first I thought that this was the wrong thing to do because it was making a game out of a negative activity, but it seems like it has lessened the occurrences. I am wondering if what is really happening is that he realizes we are thinking he is being “goofy” instead of responding to his frustration and so he is replacing the activity with something more persuasive. For example: he is coming up to us now and taking our hand and making verbalizations like “uh,uh,uh” and then leading us to things instead of just dropping and head butting.

In addition to this, we have noticed that he is biting his nails more often. When he does this, we say “No Bite” and pull his hands away from his mouth (gently). He is starting to get that now, because within the past week, when we say “no bite” he drops his hands to his waist. I believe that the trick here is to use the same words and actions each time you correct the negative act so that he can figure out what you are telling him and then make sure you tell him every time you see his hands in his mouth. If you are not consistent, you risk losing this battle.

 

I hope there is something in this e-mail that will help you make some progress with your son.

 

Take care,

Rick Poll


From: 11q_disorders@yahoogroups.com [mailto:11q_disorders@yahoogroups.com] On Behalf Of msreckless_1
Sent: Thursday, February 08, 2007 8:44 PM
To: 11q_disorders@yahoogroups.com
Subject: [11q_disorders] Re: Biggest Challenge

 

--- In 11q_disorders@yahoogroups.com, "linzee_carroll"
<linzee_carroll@...> wrote:
>
> Hi everyone! I am interested in having this group be a little
> more active. :) I thought I would start coming up with some
questions
> that people could respond to, and maybe it will prompt other
> discussions, or at the very least, we can get to know each other a
> little better! The responses will also help other parents of 11q
> children looking for information. Feel free to respond if you want,
> or ignore it if you don't. Or, if you have a good question, please
> feel free to post it.
>
> So here's the first question:
> What (currently) is your biggest challenge with or related to your
11q
> child?

Hey ya Linzee,
Well if this just isn't a great idea!!!! My biggest challenge with
Nathan right now is his head butting. He head butts everything. But he
only takes spells of doing it. I am afraid he is going to harm
himself. Has anyone else child went through this phase? Is it a phase
or a way of life? Any suggestions on how to coax him into not doing
it? At first I thought it was a way of expression for him when he got
frustrated and noticed it more often when he was tired but lately he
can just be walking throught the frontroom and stop and start
headbutting the couch arm.
Becky
>



Fri Feb 9, 2007 3:04 pm

jldpoll
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Forward
Message #74 of 976 |
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Hi everyone! I am interested in having this group be a little more active. :) I thought I would start coming up with some questions that people could respond...
linzee_carroll
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Feb 8, 2007
8:21 pm

... questions ... 11q ... Hey ya Linzee, Well if this just isn't a great idea!!!! My biggest challenge with Nathan right now is his head butting. He head butts...
msreckless_1
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Feb 9, 2007
2:20 pm

Hi Becky, We are facing the same challenge. As mentioned my son is almost 4 and the head butting started about 6 months ago. At first Daniel would hit himself...
Rick Poll
jldpoll
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Feb 9, 2007
3:17 pm

Hi Becky, Cody started head banging many years ago. It has become better over the years meaning the frequency has become less. Cody is now 9 years old. I agree...
Laura
lccw
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Feb 10, 2007
2:34 pm

... 11q ... Hi Linzee, Our son Daniel is almost 4 and the biggest challenge we are having is with speech. Daniel can say a number of words but cannot group ...
jldpoll
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Feb 9, 2007
2:22 pm

Hi Rick, Congratulations on your son talking at 4 years old :) Cody is 9 and does not speak by mouth at all. It does not help matters though that he does not...
Laura
lccw
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Feb 10, 2007
2:25 pm

Hello Everyone, I would like to ask about the schools your children are in. Nathan will be turning 5 in August. He is non-verbal and it is suggested he goes...
Ms Reckless
msreckless_1
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Feb 11, 2007
12:18 am

I know the options for school are different in each state. We don't have state schools, instead all special needs classrooms are in the regular public...
linzee_carroll
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Feb 11, 2007
2:14 am

... 11q ... I would say the biggest concern we have is the final heart surgery, the Fontan, but the biggest challenge we have with Faith is the eating. She is...
dad_11q
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Feb 9, 2007
2:23 pm

I feel like I can relate to most of the challenges. Brayden used to bang his head all the time, but unlike some of the others, he was not doing it for...
linzee_carroll
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Feb 10, 2007
4:30 pm

Cody attends a Center school for handicap/behavioral kids. I also teach at this school. We have about 100 students averaging 6-8 students per class room. I...
LAURA WAIT
lccw
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Feb 11, 2007
2:05 am

My daughter is 12 years old. School, for many years was the challenge. She was in inclusion, in special ed, and in a private school. For the last 3 years,...
Gretchenwarren@...
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Feb 11, 2007
2:06 am

... questions ... 11q ... Hello everyone. I have not been in touch with most of you for a very, very long time and some of you I have yet had the pleasure to...
angelag39
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Feb 21, 2007
3:06 am

Angela, I would love to see pictures of Matthew. I remember how similar he and Brayden were at the 2000 conference. We are working on potty training (or at...
linzee_carroll
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Feb 21, 2007
1:48 pm

Linzee, I turn on the bath water while he sits there on the big potty. I have it going pretty strong so that he hears the water. Nature just seems to flow, if...
angelag39
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Feb 23, 2007
1:58 pm

Linzee, One other challenge we are facing is drooling. Daniel is almost 4 and he drools excessively. His shirts stay dry for about ½ an hour and then the...
Rick Poll
jldpoll
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Feb 23, 2007
2:45 pm

Rick, Drooling has also been a big problem for us. The soaking wet shirts sounds very familiar. Brayden drools because he chews on anything and everything...
linzee_carroll
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Feb 23, 2007
3:02 pm

Thanks Linzee, I had heard of the people putting things on their children's fingernails to make them stop biting their nails but I thought this was a home...
Rick Poll
jldpoll
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Feb 23, 2007
3:48 pm

high, Just wanted to share my thoughts on the drooling. Nathan used to drool really bad. His developemental therapist worked on his swallowing and it helped...
Ms Reckless
msreckless_1
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Feb 24, 2007
9:59 pm

Nathan's mom: Thanks for your input. Daniel has not seen a PT or OT in about a year and this may be something that we will need to address with them. Thanks...
Rick Poll
jldpoll
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Feb 26, 2007
7:08 pm

... problem. I notice that Matthew drools more when he is anxious, then at other times. For example, he does not drool as much, as if we are out at a store,...
angelag39
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Feb 27, 2007
2:12 am

ANGELA: HI. THIS IS SANDY, JADE'S GRANDMOTHER. HAVE YOU OR ANYONE ELSE OUT THERE EVER THOUGHT ABOUT TEACHING YOUR CHILD TO SIGN.?. I GOT DVD'S AND A BOOK ...
SANDYCST1@...
sandy.jade
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Feb 26, 2007
1:19 pm

I have to agree. Nathan started learning sign when he was 2. I find it easier to communicate with him and he dosn't seem to get as frustrated because he can...
Ms Reckless
msreckless_1
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Feb 27, 2007
2:08 am

Yes, initially when he was in the early childhood intervention program, they would sign with him and also teach us to sign with him. He would sign for more,...
Angela Garcia
angelag39
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Feb 27, 2007
2:11 am
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