> So here's the first question:
> What (currently) is your biggest challenge with or related to your
11q
> child?
>
I would say the biggest concern we have is the final heart surgery,
the Fontan, but the biggest challenge we have with Faith is the
eating. She is 2 1/2 years old and been on the tube feeds since
birth. We feel like we have tried everything. We are currently
seeing a Behavior Theropist and having luck with other issues but the
feeding she is not giving an inch on. She puts everything in her
mouth but food. I can even get her to play with a spoon, put it in
her mouth, chew on it but if I take it and just dip it in some baby
food, pudding, yogert, etc. she won't even pick it back up. After
seeing the other kids at the conference and talking with the parents
we were aware of the problems these children face with eating but
WOW!
Hi everyone! I am interested in having this group be a little more active. :) I thought I would start coming up with some questions that people could respond...
... questions ... 11q ... Hey ya Linzee, Well if this just isn't a great idea!!!! My biggest challenge with Nathan right now is his head butting. He head butts...
Hi Becky, We are facing the same challenge. As mentioned my son is almost 4 and the head butting started about 6 months ago. At first Daniel would hit himself...
Hi Becky, Cody started head banging many years ago. It has become better over the years meaning the frequency has become less. Cody is now 9 years old. I agree...
... 11q ... Hi Linzee, Our son Daniel is almost 4 and the biggest challenge we are having is with speech. Daniel can say a number of words but cannot group ...
Hi Rick, Congratulations on your son talking at 4 years old :) Cody is 9 and does not speak by mouth at all. It does not help matters though that he does not...
Hello Everyone, I would like to ask about the schools your children are in. Nathan will be turning 5 in August. He is non-verbal and it is suggested he goes...
I know the options for school are different in each state. We don't have state schools, instead all special needs classrooms are in the regular public...
... 11q ... I would say the biggest concern we have is the final heart surgery, the Fontan, but the biggest challenge we have with Faith is the eating. She is...
I feel like I can relate to most of the challenges. Brayden used to bang his head all the time, but unlike some of the others, he was not doing it for...
Cody attends a Center school for handicap/behavioral kids. I also teach at this school. We have about 100 students averaging 6-8 students per class room. I...
My daughter is 12 years old. School, for many years was the challenge. She was in inclusion, in special ed, and in a private school. For the last 3 years,...
Gretchenwarren@...
Feb 11, 2007 2:06 am
... questions ... 11q ... Hello everyone. I have not been in touch with most of you for a very, very long time and some of you I have yet had the pleasure to...
Angela, I would love to see pictures of Matthew. I remember how similar he and Brayden were at the 2000 conference. We are working on potty training (or at...
Linzee, I turn on the bath water while he sits there on the big potty. I have it going pretty strong so that he hears the water. Nature just seems to flow, if...
Linzee, One other challenge we are facing is drooling. Daniel is almost 4 and he drools excessively. His shirts stay dry for about ½ an hour and then the...
Rick, Drooling has also been a big problem for us. The soaking wet shirts sounds very familiar. Brayden drools because he chews on anything and everything...
Thanks Linzee, I had heard of the people putting things on their children's fingernails to make them stop biting their nails but I thought this was a home...
high, Just wanted to share my thoughts on the drooling. Nathan used to drool really bad. His developemental therapist worked on his swallowing and it helped...
Nathan's mom: Thanks for your input. Daniel has not seen a PT or OT in about a year and this may be something that we will need to address with them. Thanks...
... problem. I notice that Matthew drools more when he is anxious, then at other times. For example, he does not drool as much, as if we are out at a store,...
ANGELA: HI. THIS IS SANDY, JADE'S GRANDMOTHER. HAVE YOU OR ANYONE ELSE OUT THERE EVER THOUGHT ABOUT TEACHING YOUR CHILD TO SIGN.?. I GOT DVD'S AND A BOOK ...
I have to agree. Nathan started learning sign when he was 2. I find it easier to communicate with him and he dosn't seem to get as frustrated because he can...
Yes, initially when he was in the early childhood intervention program, they would sign with him and also teach us to sign with him. He would sign for more,...
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