Hi! I'm new, so I'll introduce myself. I'm Kristen, mom to 3-month-
old Ayah. She was diagnosed with 11q deletion by coincidence, in a
way. A skinny little thing anyway, she lost nearly 10% of her body
weight in the first two days out here and was sent to the NICU. After
switching to a bottle, which was way harder for mom than anyone else,
she did much better. Ayah was all set to go home, but the doctors
wanted to recheck one little anomaly on her CBC. That's when we found
out she had low platelets. After a barrage of tests and a few more
days in the hospital, we finally found out about the deletion in
addition to the fact that my platelets were attacking hers. We're
still waiting to talk to the docs about what type of deletion/where,
etc. as well was what this whole platelet attack thing was. In the
meantime, Ayah is doing very well for herself. Besides the
thrombocytopenia and a little trouble eating efficiently, she's right
on track so far. We've been hooked up with Birth to 3, and the OT is
lots of fun (and lots of help for all of us!).

I haven't gotten a chance to read old posts, but I wanted to bring up
breastfeeding. Has anyone been successful at feeding their 11q baby?
Ayah likes it, but, again, isn't the best at it. She tires quickly,
sometimes has a shallow latch, and has taken to biting (with her
gums) in the past week.

-Kristen