Search the web
Sign In
New User? Sign Up
11q_disorders · 11q
  • Members Only
  • Post
  • Files
  • Photos
  • Links
  • Database
  • Polls
  • Members
  • Calendar
  • Promote
  • Groups Labs (Beta)
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Want to share photos of your group with the world? Add a group photo to Flickr.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

   Messages Help
Message #
Search:
Advanced
Serena update....   Message List  
Reply | Forward Message #673 of 977 |
Re: [11q_disorders] Serena update....

Hurray for you Glad they are finally paying attention.I've had to get a little nasty with a few to get my piont across .We are around these kids 24/7 they see alot less.  They need t olisten. Might want to start a journal and take it with you to appiontments. Peggy

--- On Sun, 1/18/09, Erin Rebecca Bross <erinrebecca2002@...> wrote:

From: Erin Rebecca Bross <erinrebecca2002@...>
Subject: [11q_disorders] Serena update....
To: 11q_disorders@yahoogroups.com
Date: Sunday, January 18, 2009, 7:06 PM

Hello all. Just a quick update again on Serena....
She's been in the hospital since Jan. 6th. They actually did the sleep
study here and guess what....Serena does NOT have the centeral
hypoventilation. ...that is great news! And it also proves that this
breathing problem she's had is not from her brain! Duh on the doctors.
But we do have to go home on full time oxygen.
And we also won another battle with the doctors....we got our deep
suction machine and pulse ox monitor too!!! So hah on them....so now I
feel a lot better. Will update later on...
Erin Bross
Tue Jan 20, 2009 3:02 am

Show Message Option
thesqaw
Offline Offline
Send Email Send Email

Forward 		Message #673 of 977 |
Expand Messages Author Sort by Date

Hello all. Just a quick update again on Serena.... She's been in the hospital since Jan. 6th. They actually did the sleep study here and guess what....Serena... 		Erin Rebecca Bross
erinrebecca2002
Offline Send Email 		Jan 20, 2009
2:16 am

Erin, I'm glad that you are starting to win some battles with the doctors. We We went through similar battles to get Zachon O2 and a pulse ox when he was...
linzee_carroll
Offline Send Email 		Jan 20, 2009
2:26 am

Hurray for you Glad they are finally paying attention.I've had to get a little nasty with a few to get my piont across .We are around these kids 24/7 they see...
Peggy St.Clair
thesqaw
Offline Send Email 		Jan 20, 2009
3:03 am

Hi Erin, So glad to hear positive things are happening for Serena and for you, I have always gone by mothers instinct, Like Peggy says we are with these kids...
Marie Hardey
dylansmum77
Offline Send Email 		Jan 20, 2009
9:37 pm

Erin - Yeah for the accomplishments your have made with these doctors. A journal is a great idea, just making the time for it. I hope your stress level is...
Nette M
halfcompletepkg
Offline Send Email 		Jan 20, 2009
9:38 pm
< Prev Topic  |  Next Topic >
Message #
Search:
Advanced
Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help