11q_disorders : Message: Re: [11q_disorders] Re: Introduction

HI BECKY:

I AM SO SORRY. I REALLY DON'T KNOW HOW YOU GOT JEREMY'S LETTER, BUT WITH ME AND THIS COMPUTER--ANYTHING IS POSSIBLE. LOL MY DAUGHTER, NICOLE (JADE'S MOM) TELLS ME I NEED TO TAKE A COMPUTER COURSE. I THINK SHE IS RIGHT, BUT----

I DON'T REMEMBER A LOT OF NAMES FROM THE CONFERENCE. DO YOU HAVE A PICTURE OF NATHAN YOU CAN SEND ME AND I WILL LET YOU KNOW IF I HAVE ANY OF HIM TO SEND YOU. I APOLOGIZE BUT I DON'T HAVE A GOOD MEMORY.

I DO WANT TO POST SOME OF THE PICTURES BUT DON'T KNOW HOW TO DO IT ON THE 11Q SITE. CAN YOU GIVE ME ANY HELP?

THANKS,

HAVE A GOOD DAY.

SANDY

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Hi list members, My name is Mary Stoner and I am the proud grandmother of 9 grandchildren. My husband and I live in Galesville, Wisconsin-------kind of between...

stonermary@...
daystar2song

Sep 4, 2006
8:11 pm

Hi.....my name is Marisa Feeley. I live in Dacula, GA with my husband and 3 boys. My youngest son, Noah, was born on March 27 06. He is 8 months old now. He...

feeleym65

Nov 28, 2006
9:11 pm

Hi Marisa, My son Daniel is now 3 and a half years old. He was born with trigonocephaly and we had the condition surgically corrected when he was 6 months old....

Rick Poll
jldpoll

Nov 28, 2006
10:02 pm

Marisa, Brayden had the head surgery when he was 8 months old. We had to wait until his platelets were at 60,000. And then he had platlets given throughout...

linzee_carroll

Dec 12, 2006
10:17 pm

Hi Marisa, I see this has been a while and I am sorry I didn't get you this info earlier, but my daughter Faith Marie was born September 1, 2004 with an 11q...

dad_11q

Jan 15, 2007
3:22 pm

Hi Rick Thank you for your reply. Are you from this area? I was wondering who did the surgery. You mention that surgery was not an option. This is something I...

feeleym@...
feeleym65

Nov 29, 2006
12:19 am

Hi Marisa, I live in the Detroit area in Michigan. Daniel's surgery was performed by Dr Roselle at Children's Hospital in Detroit. She is the head of the ...

Rick Poll
jldpoll

Nov 29, 2006
9:00 pm

Hello Marisa- I'm Sarah and my daughter is a Jacobsen Child. I wanted to put my 2 cents worth in this conversation due to the platelet issue. Have the...

Kyauburn1@...

Nov 30, 2006
12:17 am

JEREMY HI. THIS IS SANDY HEBERT. JADE'S GRANDMOTHER. WE MET IN CALIF. AT THE CONVENTION. DO YOU REMEMBER? YOU SENT ME A LETTER THAT WAS MEANT FOR SOMEONE ELSE....

SANDYCST1@...
th156498

Jan 15, 2007
11:30 pm

Sandy, I'm not Jeremy (apparently ~laughs~) This is Nathan (the red head) Cato's mom. If you would not mind I would like copies of any of the pics you have...

msreckless_1

Jan 16, 2007
2:33 pm

HI BECKY: I AM SO SORRY. I REALLY DON'T KNOW HOW YOU GOT JEREMY'S LETTER, BUT WITH ME AND THIS COMPUTER--ANYTHING IS POSSIBLE. LOL MY DAUGHTER, NICOLE (JADE'S...

SANDYCST1@...
th156498

Jan 17, 2007
7:43 pm

Hey ya Sandy, When you post a letter to the group everyone in the group is able to see it. No worries :) I posted a few pics of Nathan on the groups page. The...

Ms Reckless
msreckless_1

Jan 17, 2007
8:17 pm

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