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Reply | Forward Message #512 of 975 |
Re: [11q_disorders] Re: behavior problems

Linzee,

Behaviorists work with all cognitive and behavior levels of kids -- lower functioning kids can be taught using ABA. Years ago, when school used time out and "punishment" for Morgan, her behavior would spiral into other behavior of protest -- like toileting issue.  From an ABA standpoint -- they almost never want you to use time out or punishment because as a rule , this gives attention to the behavior.  From the mom of a child with 11 Q, we both know our kids love attention.  Morgan's behavior wasn't as severe, but when I show more emotion (being upset), behavior would worsen.  I know its hard, but try to be calm when you show him a replacement behavior for the inappropriate behavior.  If he sees you reacting (even if it is negative), it reinforces his behavior.  Again, you should qualify for some help from a behaviorist.  Call me if you want.

Gretchen


-----Original Message-----
From: linzee_carroll <linzee_carroll@...>
To: 11q_disorders@yahoogroups.com
Sent: Mon, 1 Sep 2008 8:56 pm
Subject: [11q_disorders] Re: behavior problems

Thank you so much for all of your suggestions! It's nice to know that
I'm not alone in this.

The medications are not typically used for behavior problems, but some
of the medications used for attention have had the added result of
helping to control behaviors. Beleive me, I am only wanting to try
this as a last resort. We have tried everything. Unfortunately, my
boys are lower funtioning than many of the other JS kids and really
don't have a cognitive understanding of discipline methods that you
would use with normal functioning children. Even their neurologist is
at a loss as to what to do for either of them because they have a very
limited understanding of right and wrong. We have a time out chair,
but it really doesn't mean much to them. They don't understand why
they are sitting there or even what they are doing wrong. I know many
of Brayden's behaviors come from communication difficulties. We have
tried picture exchange, devises, etc., but so far he still can't make
the connection that it is for communication and not to play with. I
have also tried ,as Gretchen mentioned, to try and figure out what is
going on right before the behaviors. The only common thing is that he
only does it to immediate family memebers and only when he is at home.
I really feel like it is because he is not getting as much attention as
he wants. He does fine when he has 100% attention, but of course with
3 kids, there is no way that I can provide that all the time. My
biggest worry right now is that he is really starting to get strong and
he is really hurting his siblings. He frequently draws blood, leaves
bruises, etc. and I am just worried if this doesn't get under control
soon, he is really going to hurt one of his siblings. As it is right
now, I can't let him be in a room alone with his brother or sister. He
has to be watched at all times. I like my home to be a place where my
kids feel safe and comfortable and where they have a refuge from the
world, so I'm working hard to make sure that it stays that way. Thanks
again for all of your help and keep the suggestions coming!

Linzee
--- In 11q_disorders@yahoogroups.com, "lainey_presh" <lainey_presh@...>
wrote:
>
> Hi everyone, I am quite shocked to see people's response in the USA is
> to use medication to control challenging behaviour. Here in the UK
> medication would be a last resort. Challenging behaviour is generally
> caused by communication difficulties, so the key is to find a better
> way for your child to communicate with you. Also use all the same
> methods you would use with non disabled children (naughty chair/praise
> for good behaviour/time out etc) and don't let anyone let your child
> get away with bad behaviour just because they are disabled.
> Good luck, its a challenge for us all!
> Lainey
>



Tue Sep 2, 2008 7:37 pm

Gretchenwarren@...
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Message #512 of 975 |
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I need some suggestions for controlling behaviors in 11q kids. Brayden is just getting very hard to control. When he is at home, he just seems to be...
linzee_carroll
Offline Send Email
Aug 30, 2008
9:07 pm

hi linzee, i don't know if you remember, but i had told you with nick we've had real good success with Stratera 25mg once a day. you can maybe talk to your doc...
joan romig
romigt
Offline Send Email
Aug 31, 2008
2:01 am

Caitlyn has behavioural problems (biting and scratching to tell us no) and we tried a couple of meds and abilify seems to be working for her.  Not to say that...
Juliette Cody
juliettecody
Offline Send Email
Aug 31, 2008
2:01 am

Unfortantly behavior is a big part of 11q-. Resperidal helps with  outbursts as does a seizure med Depakote. Clonidine works to calm and helps let them...
Peggy St.Clair
thesqaw
Offline Send Email
Aug 31, 2008
2:01 am

Faith is also lashing out with the biting and pinching but it seems to be more directed to Jana and I right now and very thankful it doesn't seem to be this...
Jeremy Pyle
dad_11q
Offline Send Email
Aug 31, 2008
2:02 am

It is so nice to see there is meds now that can help you make it with these angles. When Grace was young the Dr gave me a script for benadryl and said good...
Peggy St.Clair
thesqaw
Offline Send Email
Aug 31, 2008
12:53 pm

JEREMY: YOU SAID FAITH LASHES OUR MORE WHEN SHE IS CONSTIPATED. WHY DON'T YOU ASK HER DR. ABOUT THIS POWDER CALLED POLYETHYLENE GLYCOL. I AM TELLING YOU "IT...
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Sep 1, 2008
1:17 am

Hi Sandy - I'm glad you made it to Panama City safely! The news keeps talking about how Gustav isn't as bad as predicted - but the pictures I'm seeing look...
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sherrydimmick
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Sep 2, 2008
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??????????? SHERRY:? THANKS. IT TOOK US A LONG TIME TO GET HERE. THE TRAFFIC WAS TERRIBLE BUT WE TOOK SOME BACK ROADS AND THAT HELPED A LOT. ???????????? THERE...
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th156498
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Sep 3, 2008
2:54 am

Hope you get to go home soon.We are getting the rain from the hurricane here int he Ozarks. We exspect to get about 7-10 inches. Now they say there is another...
Peggy St.Clair
thesqaw
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Sep 3, 2008
8:43 pm

Linzee, I can not speak in terms of medications, but know that even with meds you need?the support of a behavior plan.? I?can give some general?advice as a...
Gretchenwarren@...
Send Email
Aug 31, 2008
12:54 pm

Linzee and all, I can relate to all the behavior issues that have been mentioned. I have not taken Cody to the doctor regarding his behaviors only because I...
Laura Wait
lccw
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Sep 1, 2008
1:15 am

Hi Linzee - We had success with methylphenidate (generic Ritalin) for many years that helped with both behaviors and attention. When Erik started getting...
MahlonGreene&SherryDi...
sherrydimmick
Offline Send Email
Sep 1, 2008
1:16 am

I don't know where you live but contact your developemental disabilites organizton and see what programs they have for adults. Grace goes to a center for the...
Peggy St.Clair
thesqaw
Offline Send Email
Sep 1, 2008
2:51 am

Hi everyone, I am quite shocked to see people's response in the USA is to use medication to control challenging behaviour. Here in the UK medication would be a...
lainey_presh
Offline Send Email
Sep 2, 2008
1:31 am

Thank you so much for all of your suggestions! It's nice to know that I'm not alone in this. The medications are not typically used for behavior problems, but...
linzee_carroll
Offline Send Email
Sep 2, 2008
1:56 am

We have a time out chair, but it really doesn't mean much to them. They don't understand why they are sitting there or even what they are doing wrong. I know...
stonermary@...
daystar2song
Offline Send Email
Sep 2, 2008
5:02 pm

Linzee, Behaviorists work with all cognitive and behavior levels of kids -- lower functioning kids can be taught using ABA. Years ago, when school used time...
Gretchenwarren@...
Send Email
Sep 3, 2008
2:54 am

Linzee, Have you searched your area for a behavior analyst? They could possibly be a huge help in this matter?! We have them here in Fl. and they come into...
Laura Wait
lccw
Offline Send Email
Sep 3, 2008
2:55 am

Hi Peggy - Thank you for sharing so much about Grace. We live in Alaska - and are on a Medicaid waiver waitlist with approximately 1000 other people in the...
MahlonGreene&SherryDi...
sherrydimmick
Offline Send Email
Sep 2, 2008
5:01 pm

We live in North Central Arkansas and the rain has started.It is suppose to rain for the rest of the week and we will get up to 10 inches of rain. Grace is...
Peggy St.Clair
thesqaw
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Sep 3, 2008
2:52 am

In a message dated 9/3/2008 3:44:41 P.M. Central Daylight Time, thesqaw@... writes: HI PEGGY FINALLY GOT HOME YESTERDAY. THANK THE GOOD LORD. NOT MUCH...
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th156498
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Sep 7, 2008
12:34 am

glad you made it home. Today was nice, no rain and cooler; We started closing in our porch. It will be  so nice. Grace went to her aunts for the weekend. This...
Peggy St.Clair
thesqaw
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Sep 7, 2008
12:22 pm

In a message dated 9/7/2008 7:23:14 A.M. Central Daylight Time, thesqaw@... writes: glad you made it home. THANKS Today was nice, no rain and cooler;...
SANDYCST1@...
th156498
Offline Send Email
Sep 7, 2008
11:52 pm

No she hasn't walked for about 20 yrs now.She got very sick when she was 10 and had a stroke. We did alot of rehab and had her walking some with braces and a...
Peggy St.Clair
thesqaw
Offline Send Email
Sep 8, 2008
2:10 am

Hi Linzee, I'm sorry to hear your having these issues with Brayden. He was so good at the conference with us. I know Lily is higher functioning, but she too...
Lisa Worden
lworden31
Offline Send Email
Sep 9, 2008
3:40 pm
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