Hello, My name is Dakota and my daughter who is just about 4 is Laci.
I dont often post on here but do read. Your post caught my attention
because my daughter was born at Childrens. We know that she had 11q
before she was born and I had a C-section there. We later moved to
the Osseo area. I was wondering where you lived, if you dont mind me
asking. Your little one sounds wonderful, and if there is anyting I
can do to help I would be happy to. Best wishes,Dakota and Laci

--- In 11q_disorders@yahoogroups.com, "Michelle Bruns" <michelle@...>
wrote:
>
> Thanks for the warm welcome Alison!
>
> _____
>
> From: 11q_disorders@yahoogroups.com
[mailto:11q_disorders@yahoogroups.com]
> On Behalf Of Alison Keene
> Sent: Wednesday, July 30, 2008 9:08 AM
> To: 11q_disorders@yahoogroups.com
> Subject: RE: [11q_disorders] Mom of Hayden 5p-/11q+
>
>
>
>
> Hi Michelle and Hello there Big Boy Hayden
> It is very nice to meet you.
> Here in France there are seldom cases of 11Q that we hear about (I
know of
> 3) so it is a veritable pleasure to meet a fellow 11Q Mama even if
you are
> the other side of the world from us!!. Your little boy is about
the same
> age as our little girl Abigail (May 2006). I can so relate to his
> good-natured character and his contentedness with life. He sounds
> fantastic. Send him lots of French hugs ok?
> Alison
>
>
>
>
>
> _____
>
>
> To: 11q_disorders@yahoogroups.com
> From: michelle@...
> Date: Tue, 29 Jul 2008 11:44:27 -0500
> Subject: RE: [11q_disorders] Mom of Hayden 5p-/11q+
>
>
>
> Hi Nette,
> Thanks for the warm welcome!
> Hayden was born on 1/17/06 and we had his diagnosis when he was
about 2
> weeks old. That's also when we found out that my husband has a
balanced
> translocation.
>
> Things were not "normal" from the start, so they were doing a lot
of testing
> right away. The amniotic fluid was a greenish color and that was
kind of a
> red flag. He was immediately put on oxygen, but he was still
stuggling.
> The hospital he was born at did not have a NICU, so he was
transported about
> 3-4 hours after he was born and then they intibated. He spent
about 2-3
> weeks in the NICU before he was transported to Children's Hospital
in
> Milwaukee to be trached. After being trached, having a G-tube put
in, and
> other obsticals (horseshoe kidney, agenesis of the corpus colosum,
hip
> displasia; just to name a few) we finally got to bring him home in
April of
> 2006.
>
> He is still currently trached and has the G-tube. He's been through
> multiple surgeries and we think we're finally done with them for a
while.
> Hayden is unable to sit up without support. He occasionally rolls,
but it's
> still new to him and it doesn't happen very often. His therapist
recently
> got him a gait trainer and a stander, so hopefully we'll start
making some
> progression with that. Non-verbal (but boy, can he talk with his
eyes!) and
> he bats at objects, but is unable to grasp for a long period of
time.
> Dispite all of his issues he is the best natured little boy. He
rarely gets
> crabby about anything, he's just an easy going guy. He's such a
little
> sweetheart and we love him to pieces. About 6 months ago Hayden
got hearing
> aids, so he recently starting smiling and focusing on people.
We're looking
> forward to see what other kinds of progress he can make.
>
> I'm looking forward to hearing about Josh and all of the other boy
& girls
> out there!!
>
>
>
> _____
>
> From: 11q_disorders@yahoogroups.com
[mailto:11q_disorders@yahoogroups.com]
> On Behalf Of Nette M
> Sent: Tuesday, July 29, 2008 10:15 AM
> To: 11q_disorders@yahoogroups.com
> Cc: Starla Larson-Pfeifer
> Subject: Re: [11q_disorders] Mom of Hayden 5p-/11q+
>
>
>
>
>
> Welcome to the group of 11q+! My name is Annette and I am the mom
to
> Joshua. He is 8 years old and is Partial Trisomy 11q+. We live in
the
> northern Detroit area in Michigan. Did you just get Haydens
diagnosis? I
> have included my friend and 11q+ mom Starla in this email. Starla
keeps a
> great track of all the 11q+ children. (and is full of wisdom and
great
> resources and advice). I would love to swap 11q kid stories with
you.
> Josh has come along way from the ICU in 2000! He is at a 2 year
level and is
> non mobile and non verbal. But he is so happy and loveable.
>
> Take care!
>
>
>
>
> TTFN - Ta Ta For Now
> Nette
>
>
> --- On Mon, 7/28/08, Ms Reckless <msreckless_1@...> wrote:
>
>
> From: Ms Reckless <msreckless_1@...>
> Subject: Re: [11q_disorders] Mom of Hayden 5p-/11q+
> To: 11q_disorders@yahoogroups.com
> Date: Monday, July 28, 2008, 1:12 PM
>
>
> welcome to the group.
>
>
>
> <http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/04.gif> If
you learn
> from it....it is not a mistake.
> <http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/04.gif>
>
>
> --- On Fri, 7/25/08, brunsintheoven <mrsbuns91804@ aol.com> wrote:
>
>
> From: brunsintheoven <mrsbuns91804@ aol.com>
> Subject: [11q_disorders] Mom of Hayden 5p-/11q+
> To: 11q_disorders@ yahoogroups. com
> Date: Friday, July 25, 2008, 9:46 AM
>
>
>
> Hello everyone. I just wanted to introduce myself, my name is
Michelle
> and I have a 2 1/2 year old son named Hayden that has an unbalanced
> translococation of 5p-/11q+.
>
> Hello to all of you, I am looking forward to hearing about all your
> families!
>
>
>
>
>
>
>
>
>
>
>
> _____
>
> Tous vos amis discutent sur Messenger, et vous ? Téléchargez
Messenger,
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>