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Reply | Forward Message #508 of 974 |
Re: [11q_disorders] Re: behavior problems


 We have a time out chair, but it really doesn't mean much to them. They don't understand why they are sitting there or even what they are doing wrong. I know many of Brayden's behaviors come from communication difficulties. 

Linzee and list mates.............I read this list everyday but seldom write.  I am NOT in favor of using drugs to control behaviours but if it weren't for them, my granddaughter Kayla, now age 15, would not be able to go to school or anywhere else public.  She has autism and is low functioning.  She has a 2q deletion, however her 2 brothers have the 11q deletion. 
She was biting herself and others nearby, banging her head at the least provocation, etc.  She has been on Risperdal since she was 5 yo.  I'm not saying that this has cured her by any means but it has helped with her SIB's. 
No one wants their kids "drugged"  but you have to think of their quality of life and all of the other family members involved.  I feel so much empathy for those of you who are struggling daily. 

Grandma Mary

-----Original Message-----
From: linzee_carroll <linzee_carroll@...>
To: 11q_disorders@yahoogroups.com
Sent: Mon, 1 Sep 2008 8:56 pm
Subject: [11q_disorders] Re: behavior problems

Thank you so much for all of your suggestions! It's nice to know that I'm not alone in this. The medications are not typically used for behavior problems, but some of the medications used for attention have had the added result of helping to control behaviors. Beleive me, I am only wanting to try this as a last resort. We have tried everything. Unfortunately, my boys are lower funtioning than many of the other JS kids and really don't have a cognitive understanding of discipline methods that you would use with normal functioning children. Even their neurologist is at a loss as to what to do for either of them because they have a very limited understanding of right and wrong. We have a time out chair, but it really doesn't mean much to them. They don't understand why they are sitting there or even what they are doing wrong. I know many of Brayden's behaviors come from communication difficulties. We have tried picture exchange, devises, etc., but so far he still can't make the connection that it is for communication and not to play with. I have also tried ,as Gretchen mentioned, to try and figure out what is going on right before the behaviors. The only common thing is that he only does it to immediate family memebers and only when he is at home. I really feel like it is because he is not getting as much attention as he wants. He does fine when he has 100% attention, but of course with 3 kids, there is no way that I can provide that all the time. My biggest worry right now is that he is really starting to get strong and he is really hurting his siblings. He frequently draws blood, leaves bruises, etc. and I am just worried if this doesn't get under control soon, he is really going to hurt one of his siblings. As it is right now, I can't let him be in a room alone with his brother or sister. He has to be watched at all times. I like my home to be a place where my kids feel safe and comfortable and where they have a refuge from the world, so I'm working hard to make sure that it stays that way. Thanks again for all of your help and keep the suggestions coming!
Linzee
--- In 11q_disorders@yahoogroups.com, "lainey_presh" <lainey_presh@...> wrote:
>
> Hi everyone, I am quite shocked to see people's response in the USA is
> to use medication to control challenging behaviour. Here in the UK
> medication would be a last resort. Challenging behaviour is generally
> caused by communication difficulties, so the key is to find a better
> way for your child to communicate with you. Also use all the same
> methods you would use with non disabled children (naughty chair/praise
> for good behaviour/time out etc) and don't let anyone let your child
> get away with bad behaviour just because they are disabled.
> Good luck, its a challenge for us all!
> Lainey
>
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Tue Sep 2, 2008 2:19 pm

daystar2song
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Message #508 of 974 |
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I need some suggestions for controlling behaviors in 11q kids. Brayden is just getting very hard to control. When he is at home, he just seems to be...
linzee_carroll
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Aug 30, 2008
9:07 pm

hi linzee, i don't know if you remember, but i had told you with nick we've had real good success with Stratera 25mg once a day. you can maybe talk to your doc...
joan romig
romigt
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Aug 31, 2008
2:01 am

Caitlyn has behavioural problems (biting and scratching to tell us no) and we tried a couple of meds and abilify seems to be working for her.  Not to say that...
Juliette Cody
juliettecody
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Aug 31, 2008
2:01 am

Unfortantly behavior is a big part of 11q-. Resperidal helps with  outbursts as does a seizure med Depakote. Clonidine works to calm and helps let them...
Peggy St.Clair
thesqaw
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Aug 31, 2008
2:01 am

Faith is also lashing out with the biting and pinching but it seems to be more directed to Jana and I right now and very thankful it doesn't seem to be this...
Jeremy Pyle
dad_11q
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Aug 31, 2008
2:02 am

It is so nice to see there is meds now that can help you make it with these angles. When Grace was young the Dr gave me a script for benadryl and said good...
Peggy St.Clair
thesqaw
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Aug 31, 2008
12:53 pm

JEREMY: YOU SAID FAITH LASHES OUR MORE WHEN SHE IS CONSTIPATED. WHY DON'T YOU ASK HER DR. ABOUT THIS POWDER CALLED POLYETHYLENE GLYCOL. I AM TELLING YOU "IT...
SANDYCST1@...
th156498
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Sep 1, 2008
1:17 am

Hi Sandy - I'm glad you made it to Panama City safely! The news keeps talking about how Gustav isn't as bad as predicted - but the pictures I'm seeing look...
MahlonGreene&SherryDi...
sherrydimmick
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Sep 2, 2008
4:56 pm

??????????? SHERRY:? THANKS. IT TOOK US A LONG TIME TO GET HERE. THE TRAFFIC WAS TERRIBLE BUT WE TOOK SOME BACK ROADS AND THAT HELPED A LOT. ???????????? THERE...
SANDYCST1@...
th156498
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Sep 3, 2008
2:54 am

Hope you get to go home soon.We are getting the rain from the hurricane here int he Ozarks. We exspect to get about 7-10 inches. Now they say there is another...
Peggy St.Clair
thesqaw
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Sep 3, 2008
8:43 pm

Linzee, I can not speak in terms of medications, but know that even with meds you need?the support of a behavior plan.? I?can give some general?advice as a...
Gretchenwarren@...
Send Email
Aug 31, 2008
12:54 pm

Linzee and all, I can relate to all the behavior issues that have been mentioned. I have not taken Cody to the doctor regarding his behaviors only because I...
Laura Wait
lccw
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Sep 1, 2008
1:15 am

Hi Linzee - We had success with methylphenidate (generic Ritalin) for many years that helped with both behaviors and attention. When Erik started getting...
MahlonGreene&SherryDi...
sherrydimmick
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Sep 1, 2008
1:16 am

I don't know where you live but contact your developemental disabilites organizton and see what programs they have for adults. Grace goes to a center for the...
Peggy St.Clair
thesqaw
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Sep 1, 2008
2:51 am

Hi everyone, I am quite shocked to see people's response in the USA is to use medication to control challenging behaviour. Here in the UK medication would be a...
lainey_presh
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Sep 2, 2008
1:31 am

Thank you so much for all of your suggestions! It's nice to know that I'm not alone in this. The medications are not typically used for behavior problems, but...
linzee_carroll
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Sep 2, 2008
1:56 am

We have a time out chair, but it really doesn't mean much to them. They don't understand why they are sitting there or even what they are doing wrong. I know...
stonermary@...
daystar2song
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Sep 2, 2008
5:02 pm

Linzee, Behaviorists work with all cognitive and behavior levels of kids -- lower functioning kids can be taught using ABA. Years ago, when school used time...
Gretchenwarren@...
Send Email
Sep 3, 2008
2:54 am

Linzee, Have you searched your area for a behavior analyst? They could possibly be a huge help in this matter?! We have them here in Fl. and they come into...
Laura Wait
lccw
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Sep 3, 2008
2:55 am

Hi Peggy - Thank you for sharing so much about Grace. We live in Alaska - and are on a Medicaid waiver waitlist with approximately 1000 other people in the...
MahlonGreene&SherryDi...
sherrydimmick
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Sep 2, 2008
5:01 pm

We live in North Central Arkansas and the rain has started.It is suppose to rain for the rest of the week and we will get up to 10 inches of rain. Grace is...
Peggy St.Clair
thesqaw
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Sep 3, 2008
2:52 am

In a message dated 9/3/2008 3:44:41 P.M. Central Daylight Time, thesqaw@... writes: HI PEGGY FINALLY GOT HOME YESTERDAY. THANK THE GOOD LORD. NOT MUCH...
SANDYCST1@...
th156498
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Sep 7, 2008
12:34 am

glad you made it home. Today was nice, no rain and cooler; We started closing in our porch. It will be  so nice. Grace went to her aunts for the weekend. This...
Peggy St.Clair
thesqaw
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Sep 7, 2008
12:22 pm

In a message dated 9/7/2008 7:23:14 A.M. Central Daylight Time, thesqaw@... writes: glad you made it home. THANKS Today was nice, no rain and cooler;...
SANDYCST1@...
th156498
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Sep 7, 2008
11:52 pm

No she hasn't walked for about 20 yrs now.She got very sick when she was 10 and had a stroke. We did alot of rehab and had her walking some with braces and a...
Peggy St.Clair
thesqaw
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Sep 8, 2008
2:10 am

Hi Linzee, I'm sorry to hear your having these issues with Brayden. He was so good at the conference with us. I know Lily is higher functioning, but she too...
Lisa Worden
lworden31
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Sep 9, 2008
3:40 pm
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