From: Rick Poll

To: 11q_disorders@yahoogroups.com

Sent: Tuesday, November 28, 2006 4:14 PM

Subject: RE: [11q_disorders] Introduction

Hi Marisa,

My son Daniel is now 3 and a half years old. He was born with trigonocephaly and we had the condition surgically corrected when he was 6 months old.

Daniel wore a special fitted helmet for the next 12 months. In our case, the surgery was not an option. The front suture in Daniels head had fused early in his prenatal development and we needed to open it up for normal brain development.

I would be happy to talk to you about the procedure and answer any questions you may have.

Please let me know if I can be of assistance.

Take care,

Rick Poll

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From: 11q_disorders@yahoogroups.com [mailto:11q_disorders@yahoogroups.com] On Behalf Of feeleym65
Sent: Tuesday, November 28, 2006 12:00 PM
To: 11q_disorders@yahoogroups.com
Subject: [11q_disorders] Introduction

Hi.....my name is Marisa Feeley. I live in Dacula, GA with my husband
and 3 boys. My youngest son, Noah, was born on March 27 06. He is 8
months old now. He was born with an unbalanced translocation of
chromosomes 3 and 11(passed on paternally). Its a 3 duplication and 11
deletion. I am wondering if there is anyone else who may have this
same combination. I am also looking to communicate with anyone who is
dealing with feeding difficulties, trigonocephaly, VSD, glaucoma and
severe hearing loss. My husband and I are currently making a decision
as to whether we should move forward with cranial surgery to correct
his metopic synostosis. Is there anyone who is familiar with this and
what helped you decide on going through with it?

Thanks!

p.s. Linzee we spoke on the phone a while ago. Hope to talk to you
again soon.