Thanks so much,I hope Nick has a good birthday, we were hoping for
Chailen's to close also, but it is fairly large, but everyone has
said it will help so many different problems she has.I will keep
everyone updated and thanks again.
Sue


--- In 11q_disorders@yahoogroups.com, "romigt" <joanmomofnick@...>
wrote:
>
> --- In 11q_disorders@yahoogroups.com, "Sue Evans" <sevans_vp@>
wrote:
> >Hi Sue,
> It's Nick's mom. I will keep you and your family in my prayers and
> heart. Nick will be turning 12 on the 21st and we say a special
prayer
> just for Chailen. Sorry I haven't gotten to you sooner, been real
busy.
> but you had questioned Chailen's weight gain, like i said nick wil
be
> 12 and he weighs only 55lbs. can you imagine. he's so tiny and as
> you've heard that is not unusual for the kids with this disorder.
> You'll probable see a difference when her heart is repaired also
> because her heart won't have to work so hard. Nick didn't need
surgery,
> but after the hole closed, he gained quite a few pounds initially.
i
> hop this helps.
> Joan
> >
> > This is Chailen's grandmother, she seen the heart Dr.yesterday
they
> have
> > set her heart surgery for the 21st of this month, please keep her
in
> > your prayer's.
> >
> > Sue Evans
> >
>