Search the web
Sign In
New User? Sign Up
11q_disorders · 11q
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Real people. Real stories. See how Yahoo! Groups impacts members worldwide.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
Cranial Surgeries   Message List  
Reply | Forward Message #276 of 976 |
I was just wondering how the parants whos children had skull
surgeries, what there impressions were on how it affected their
childrens developement. Expecially ones done later in life.

My daughter Faith had one at roughly 9 months and the surgery corrected
the mitopic suture but the bone has not filled in on the side like they
had hoped and the doctor has mentioned another surgery.


Thank you,
Jeremy
Faith(3 1/2 years old, 11q23.3 deletion)





Thu Mar 6, 2008 2:24 am

dad_11q
Offline Offline
Send Email Send Email

Forward
Message #276 of 976 |
Expand Messages Author Sort by Date

I was just wondering how the parants whos children had skull surgeries, what there impressions were on how it affected their childrens developement....
Jeremy
dad_11q
Offline Send Email
Mar 6, 2008
4:47 pm

Jeremy, My son Daniel who is going to be 5 next month had craniosynostosis / trigonocephally at birth. The suture that needed to be opened was in the center of...
Rick Poll
jldpoll
Offline Send Email
Mar 6, 2008
11:13 pm

Jeremy, My son Daniel who is going to be 5 next month had craniosynostosis / trigonocephally at birth. The suture that needed to be opened was in the center of...
jldpoll
Offline Send Email
Mar 6, 2008
11:13 pm

Rick, Sounds like Daniel had the same suture that closed and surgery that Faith had. It is our understanding that when the sutures are reopened that the area...
Jeremy Pyle
dad_11q
Offline Send Email
Mar 7, 2008
5:52 pm

Jeremy, Daniel had / has the horizontal ridge exactly as you described as well as the dimples around the temples. We thought that the horzontal ridge was due...
jldpoll
Offline Send Email
Mar 7, 2008
7:34 pm

Rick, didn't you also mention that Daniel had to wear a helmet after surgery for some reason? ... From: Jeremy Pyle <dad_11q@...> To:...
Jana Wells
janabananablue
Offline Send Email
Mar 7, 2008
7:34 pm

Yes, Daniel wore a helmet for 6 months after the surgery to stabalize his skull as it was healing. RP ... surgery for some reason? ... Faith had. ... area is...
jldpoll
Offline Send Email
Mar 7, 2008
11:33 pm
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help