I'm the Grandmother to Chailen she is a JS baby. She will be six wks.
old Tue. Jan. 1st. She will be coming home for the first time tomorrow
ths 31st of Dec. It has been a long wait for us, we are so happy to
finally have her home. We dind't know nothing about JS until about two
months ago, she was diganosed before birth. I know we will have to take
it one day at a time with her.
I'm the Grandmother to Chailen she is a JS baby. She will be six wks. old Tue. Jan. 1st. She will be coming home for the first time tomorrow ths 31st of Dec....
Congratulations, and welcome!!! I don't think any of us knew aboutJS either until after our kids were diagnosed. You were blessed to find out before...
Chailen is now 3 mons. old and weighs 7lbs. She is doing so well, she is staying awake most of the day and making all kinds of sounds. She will have her heart...
I'm Cailens grandmother, I just wanted to say that I read all the post and enjoy hearing about all of your children. Chailen is 5 and a half mons. old now and...
Grace had a terrible time gaining weight at first. I would add an egg to her milk.She didn't tolerate being nursed.She had to much trouble sucking.Remember...
Both of my 11q boys have always had a hard time gaining weight, but especially my oldest. He was very premature and only weighed 2 1/2 lbs. at birth, but has...
Nathan is 5 1/2 and weighs 30 pounds soaking wet. Faliure to thrieve has always been an issue with Nathan. When he was a baby the doctor had him on Enfomil 24...
Hello all, This is Gretchen -- Morgan's mom.? You must all remember that 11q children are deficient in the growth hormone so short stature is common.? You may...
Gretchenwarren@...
May 3, 2008 12:44 am
Keep up the good work. Faith was not going to be given the chance for heart surgery twice due to a mild brain bleed that she had at birth and the bleeding...
Thank you all so much, it is good to know that we are not the only one's with this problem,she has had a lot of prayers,and that means a lot to us. She is on...
Peggy, Hi. Am I reading your e mails right. Grace is 33 yrs old not 3 yrs old? Were there any issues with her and her periods? I thought I had read there ...
Yes she is 33 Her period was a real problem and she was givne the depo provera shot monthly.Thsi controled most of it but it does cause weight gain. She kept...
Peggy, you said Grace was 12 pounds at 6 mons. that was great, Chailen will be 6 mons. old the 20th of this mon. she has not reached 8 pounds yet, Did you give...
This is Chailen's grandmother, she seen the heart Dr.yesterday they have set her heart surgery for the 21st of this month, please keep her in your prayer's. ...
... It's Nick's mom. I will keep you and your family in my prayers and heart. Nick will be turning 12 on the 21st and we say a special prayer just for Chailen....
Thanks so much,I hope Nick has a good birthday, we were hoping for Chailen's to close also, but it is fairly large, but everyone has said it will help so many...
Praying for a great surgery and a quick recovery. Make sure they give her antibiotics a few days before the surgery. Just to ward off any bug she may be...
Chailen had heart surgery last Wedsday, she was 6 months old last Tuesday, she got to come home today she is doing good. She weighs 8 lbs. 12 oz. I hope she...
I know I posted earlier today that this is Chailen's first birthday, but we also found out today she has the early stage of pneumonia and a upper respiratory...
Happy Birthday Chailen! As for the pnemonia, my boys had pnemonia several times a year until they were about 4. They often were in the hospital for it and...
Nathan had a reoccuring pnemonia when he ws aroud two. He ws treated by his peditrican, spent a week in the hospital and then discharged just to go back in...
Has she ever been checked for aspiration.Alot of thesekids have swalolowing problems A simple thickener in what they eat and drink stops the respitory...
Sue- I'm so sorry to hear she is sick, especially on her birthday:( I too had the thought of whether or not she has been checked for aspiration. Brooke does...
Thank's everyone, I spoke with her mother this morning and she is doing much better, the really bad night was Wen. she went to the Dr. yesterday and I guess...
I was worndering if any of your children at some point stopped growning and gaining weight for a period, Chailen has been the same weight and height for 2-3...
My son Brayden has not grown in over 2 years now. He is 10 and has been 41 lbs. since he was 8. I think he grew a bit taller, but just barely. The doctor...
While Morgan is petite for her age, she does not have a big appetite.? She prefers carbs -- pancakes, waffles,quesadillas-- anything with bread, and eats more...
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