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11Q trisomy   Message List  
Reply | Forward Message #186 of 974 |
Re: [11q_disorders] 11Q trisomy

Regarding the Cri Du Chat Syndrome-- I found a website for a support group.  I'm not sure if you are aware of this group.   It is www.fivepminus.org   Maybe they can help answer some of your questions.  I'm sure you must have a lot of unanswered questions--- don't we all???  We,each,are dealing with very special children.  Hope this helps.
 
11Q (JS) Mom- Sarah
Sat Dec 29, 2007 9:24 pm

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Kyauburn1@...
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Forward 		Message #186 of 974 |
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Hi, there doesn't seem to be any info about trisomy, only jacobsons syndome, are there any other trisomy parents out there? my son is 17 with trisomy 11q as... 		lainey_presh
Offline Send Email 		Dec 29, 2007
5:07 pm

Regarding the Cri Du Chat Syndrome-- I found a website for a support group. I'm not sure if you are aware of this group. It is _www.fivepminus.org_ ...
Kyauburn1@...
Send Email 		Dec 30, 2007
8:11 pm

We have several families that have trisomy 11q children that are a part of the 11q Research and Resource Group. I'm not sure if any are on this discussion...
linzee_carroll
Offline Send Email 		Dec 31, 2007
1:53 am

Thanks Linzee, I would like to find out more about 11q, I know all about cri du chat, and just wonder if some of his features are to do with 11q, or are they...
lainey_presh
Offline Send Email 		Jan 1, 2008
5:38 pm

... Does your son have a unbalanced translocation of 5p-/11q+????? If so, my daughter also has 5p-/11q+. I would love to hear about your son!!! Stefanie...
batdorff0802
Offline Send Email 		Jan 3, 2008
2:04 am

I don't know much, but we did meet families whose children had cataracts at the last conference. Vision problems in general seem very, very common. I hadn't...
Jana Wells
janabananablue
Online Now Send Email 		Jan 3, 2008
2:47 pm

My son Daniel (11q 24 to ter) is almost 5 and his molars (top and bottom) did not erupt until this past year. He was however on a soft food diet until this...
Rick Poll
jldpoll
Offline Send Email 		Jan 3, 2008
3:54 pm

Thanks for the messages about 11Q trisomy. has anyone posted a picture of a trisomy child on here? I havent seen any pictures of kids who only have trisomy11...
lainey_presh
Offline Send Email 		Jan 3, 2008
6:05 pm
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