I have 3 grandsons that have 11q deletion and none of them have had any heart problems. Their ages are 6, 11, and 13. Of course, they do not have JS either. From what I have been told, their breakpoints are not at that critical point.
None of them as young children have been aggressive and they are not that way now. Thank God for that. It is a hard thing to deal with.
Mary Beth
Hi Mary Beth:
I am a little confused. I thought 11q deletion was J.S. but you say your grandsons all have an 11q deletion? Do you know where there deletion is? My grandaughters deletion is 24.2.
nicole is doing good after a larengostimy lazer surgery for granulation around the trach ear tubes and abr test all done on tuseday the 21 will be seeking...
Glad to hear she is doing well. I hope she is able to get the trach out soon. Brayden has ABR's quite often with his surgeries and he seems to get a...
My daughter is 20 months and is very aggressive. Are anyone else's JS babies aggressive? Her teacher said that it probably comes with the syndrome. She is a...
Faith does the biting and pinching also, mostly when she doesn't feel well. From what we have learned of the syndrome they are not aggressive, but it is...
I have to agree with Jana. Nathan does not bite but headbutts. All of his therepist think it is a sensory need. He does not headbutt as often now that he signs...
I was thinking that I was more of a communication thing. We try to teach her signs which she knows some. She just gets really mad very fast. I try to remove...
Redirection does not always work with Nathan either although that is my first way of trying to deal with it when he becomes aggressive. Secondly I will massage...
Faith, now 3 yrs old, has Hyoplastic Left Heart Syndrome. She has gone thru the Norwood and the Glenn and will have the Fontan sometime in the next year. The...
My son Daniel is 4 and still bites, but it is slacking off in frequency. He mostly does it out of frustration. Another thing that he does is hit himself in the...
Like Jana said, Faith is a biter and a pincher too but most of the time it does not seem to be out of aggression unless she doesn't feel well. With Faith, we...
My boys, Brayden and Zachary (both JS) are aggressive with each other and with us, but not with others. Brayden pinches, especially when he is frustrated....
In a message dated 8/24/2007 9:16:34 AM Central Daylight Time, msreckless_1@... writes: Nathan has an enlarged heart and a prolapsed valve. From what I...
I have 3 grandsons that have 11q deletion and none of them have had any heart problems. Their ages are 6, 11, and 13. Of course, they do not have JS either....
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