Faith, now 3 yrs old, has Hyoplastic Left Heart Syndrome.  She has gone thru the Norwood and the Glenn and will have the Fontan sometime in the next year.  The first 2 surgeries and the final one all done at Miami Children's

Erin Kewer <erin.kewer@...> wrote:

I was thinking that I was more of a communication thing. We try to teach her signs which she knows some. She just gets really mad very fast.

I try to remove her away from the situation and distract her quick. It works sometimes but she will go right back to doing it again.

Also anything question: Does any of your JS kids have heart disorders? My daughter has Hypoplastic Aortic Arch, Bicuspid Aortic Valve and Parachute Mitral Valve..

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From: 11q_disorders@yahoogroups.com [mailto:11q_disorders@yahoogroups.com] On Behalf Of Ms Reckless
Sent: Thursday, August 23, 2007 7:57 PM
To: 11q_disorders@yahoogroups.com
Subject: Re: [11q_disorders] Aggressive?

I have to agree with Jana. Nathan does not bite but headbutts. All of his therepist think it is a sensory need. He does not headbutt as often now that he signs prodomitily and can convey his needs. Nathan (yippey) turned 5 on August 19.

Jana Wells <janabananablue@yahoo.com> wrote:

Faith does the biting and pinching also, mostly when she doesn't feel well. From what we have learned of the syndrome they are not aggressive, but it is frustration that causes them to act out. I heard this is very common with ANY delayed child as they cannot communicate. Everyone we met said they grow out of the biting stage. I hope soon Faith is almost 3! :)

Erin Kewer <erin.kewer@verizon.net> wrote:

My daughter is 20 months and is very aggressive. Are anyone else’s JS babies aggressive?

Her teacher said that it probably comes with the syndrome. She is a biter and she likes to grab faces when she is mad..

Thanks

Erin

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