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nicole   Message List  
Reply | Forward Message #144 of 973 |
nicole is doing good after a larengostimy lazer surgery for granulation
around the trach ear tubes and abr test all done on tuseday the 21 will
be seeking second oppinion on the abr results as she seems to respond
but the test says shes deaf in the left and has severe to profound loss
int he right also might get the trach out if we can get her jaw lined
up and toung in the right place
Wed Aug 22, 2007 5:09 am

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trisomy11q
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Forward 		Message #144 of 973 |
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nicole is doing good after a larengostimy lazer surgery for granulation around the trach ear tubes and abr test all done on tuseday the 21 will be seeking... 		beckie
trisomy11q
Offline Send Email 		Aug 23, 2007
12:56 pm

Glad to hear she is doing well. I hope she is able to get the trach out soon. Brayden has ABR's quite often with his surgeries and he seems to get a...
linzee_carroll
Offline Send Email 		Aug 23, 2007
2:51 pm

My daughter is 20 months and is very aggressive. Are anyone else's JS babies aggressive? Her teacher said that it probably comes with the syndrome. She is a...
Erin Kewer
mommy2lissa
Offline Send Email 		Aug 23, 2007
3:37 pm

Faith does the biting and pinching also, mostly when she doesn't feel well. From what we have learned of the syndrome they are not aggressive, but it is...
Jana Wells
janabananablue
Online Now Send Email 		Aug 23, 2007
5:34 pm

I have to agree with Jana. Nathan does not bite but headbutts. All of his therepist think it is a sensory need. He does not headbutt as often now that he signs...
Ms Reckless
msreckless_1
Online Now Send Email 		Aug 24, 2007
1:53 am

I was thinking that I was more of a communication thing. We try to teach her signs which she knows some. She just gets really mad very fast. I try to remove...
Erin Kewer
mommy2lissa
Offline Send Email 		Aug 24, 2007
2:05 am

Redirection does not always work with Nathan either although that is my first way of trying to deal with it when he becomes aggressive. Secondly I will massage...
Ms Reckless
msreckless_1
Online Now Send Email 		Aug 24, 2007
2:15 pm

Faith, now 3 yrs old, has Hyoplastic Left Heart Syndrome. She has gone thru the Norwood and the Glenn and will have the Fontan sometime in the next year. The...
Jeremy Pyle
dad_11q
Offline Send Email 		Aug 24, 2007
9:05 pm

My son Daniel is 4 and still bites, but it is slacking off in frequency. He mostly does it out of frustration. Another thing that he does is hit himself in the...
Rick Poll
jldpoll
Offline Send Email 		Aug 24, 2007
2:12 pm

Like Jana said, Faith is a biter and a pincher too but most of the time it does not seem to be out of aggression unless she doesn't feel well. With Faith, we...
Jeremy Pyle
dad_11q
Offline Send Email 		Aug 24, 2007
1:55 am

My boys, Brayden and Zachary (both JS) are aggressive with each other and with us, but not with others. Brayden pinches, especially when he is frustrated....
linzee_carroll
Offline Send Email 		Aug 24, 2007
2:01 am

In a message dated 8/24/2007 9:16:34 AM Central Daylight Time, msreckless_1@... writes: Nathan has an enlarged heart and a prolapsed valve. From what I...
stonermary@...
daystar2song
Offline Send Email 		Aug 24, 2007
9:05 pm

I have 3 grandsons that have 11q deletion and none of them have had any heart problems. Their ages are 6, 11, and 13. Of course, they do not have JS either....
SANDYCST1@...
sandy.jade
Offline Send Email 		Aug 25, 2007
1:07 pm
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