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I am sorry this took so long but I have been putting alot of thought into it. I think the one thing @ the 2006 San Diego conference and @ the 2007 European conference that stood out to me was the personal stories told by parents. No matter what the age, genetic disorder, or the specific details that happen to that children, as parents we can learn from and be better prepared for things to come and possibly remember things we did differently in the past and be able to not make the same mistake twice. All the medical information we help gather and hear from the experts is great but I feel it is the life experiences we all share that helps us in the daily life activities.
Jeremy
Gretchenwarren@... wrote:
Linzee,I need to put more thought into it, but I was thinking of something specifically for our adolescents. I know this depends on how many we have. Perhaps we can do it as a transition years. 10-15 or something. From my communication with other parents, I know behavior, hormonal changes , etc. become an issue. I am planning to attend a seminar next week on puberty so I may have more ideas then. Perhaps something on Assistive technology/adaptive skills -- various ideas for parents from communication to play to computer alternatives to making things more accessible so kids can be more independent.I'll give it some more thought.
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