Search the web
Sign In
New User? Sign Up
11q_disorders · 11q
  • Members Only
  • Post
  • Files
  • Photos
  • Links
  • Database
  • Polls
  • Members
  • Calendar
  • Promote
  • Groups Labs (Beta)
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Want your group to be featured on the Yahoo! Groups website? Add a group photo to Flickr.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

   Messages Help
Message #
Search:
Advanced
Topics for 2008 Conference   Message List  
Reply | Forward Message #131 of 974 |
Re: [11q_disorders] Topics for 2008 Conference

What about someone to talk about different therapies and what they have found the different areas of therapy to help, or even alternative therapies. Or a geneticist or someone who has seen kids exceed the expectations of their doctors, like inspirational type stories. not just with JS kids, but with kids who have similar delays, etc.?

linzee_carroll <linzee_carroll@...> wrote:
I am starting to get together ideas for speakers for the 2008
conference and thought I might ask all of you for any suggestions for
topics that would be of interest to you. If you have any ideas, let
me know. If there are some topics that a lot of people want to hear
about, I need to start looking for speakers on those topics. Most of
the medical issues will be covered by Dr. Grossfeld and his colleages,
but I think we need a few more non-medical type speakers too. Let me
know if any of you have any suggestions.

Linzee


Get the free Yahoo! toolbar and rest assured with the added security of spyware protection.

Tue May 29, 2007 3:42 pm

Show Message Option
janabananablue
Online Now Online Now
Send Email Send Email

Forward 		Message #131 of 974 |
Expand Messages Author Sort by Date

I am starting to get together ideas for speakers for the 2008 conference and thought I might ask all of you for any suggestions for topics that would be of... 		linzee_carroll
Offline Send Email 		May 29, 2007
2:20 pm

What about someone to talk about different therapies and what they have found the different areas of therapy to help, or even alternative therapies. Or a...
Jana Wells
janabananablue
Online Now Send Email 		May 29, 2007
6:01 pm

Linzee, I need to put more thought into it, but I was thinking of something specifically for our adolescents. I know this depends on how many we have....
Gretchenwarren@...
Send Email 		May 29, 2007
6:01 pm

I am sorry this took so long but I have been putting alot of thought into it. I think the one thing @ the 2006 San Diego conference and @ the 2007 European...
Jeremy Pyle
dad_11q
Offline Send Email 		Jun 20, 2007
2:26 am

I competely agree. We will definatley still do break out groups but maybe allow more time for them this time and maybe do it a couple of different times with...
linzee_carroll
Offline Send Email 		Jun 20, 2007
4:38 pm

Carolyn is 14 - will be 15 in Sept. We just found out 2 years ago that she has Jacobsens. Like all of you we have experiences so many things in so many...
Syretz Family
syretz@...
Send Email 		Jun 20, 2007
12:28 pm

... that she has Jacobsens. Like all of you we have experiences so many things in so many different areas of CArolyn's life - physical medical problems,...
linzee_carroll
Offline Send Email 		Jun 20, 2007
4:52 pm

I would have to agree with Jeremy. I took alot away from the parents "outbreak session". I would pesonally like to here Amy's parents speak if at all possible...
Ms Reckless
msreckless_1
Online Now Send Email 		Jun 20, 2007
6:37 pm

Stell, I would like to say that you are 100% correct. There is no other child "like" Carolyn. When my son, Nathan, was diagonosed with 11Q- the doctors told...
Ms Reckless
msreckless_1
Online Now Send Email 		Jun 20, 2007
6:38 pm

Stell actually brought up a good topic too with insurance struggles and what about other possible organizations that might help our children. We actually are...
Jeremy Pyle
dad_11q
Offline Send Email 		Jun 21, 2007
1:30 am

I would also love to get involved. My daughter is 1 1/2 and she was diganosed at birth with JS. She is a very smart little girl. She is 6 months behind and in...
Work At Home
mommy2lissa
Offline Send Email 		Jun 20, 2007
4:32 pm

Due to great conflict with our public school system over what is an appropriate placement and services for Carolyn- Rich and I have found a website we believe...
Syretz Family
syretz@...
Send Email 		Jul 8, 2007
2:33 am
< Prev Topic  |  Next Topic >
Message #
Search:
Advanced
Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help