11q_disorders : 11q

1 New Member - 23 New Messages - 8 New Photos

This is a place for families, friends and caregivers of children or adults with 11q disorders to find support, share advice, and ask questions.

NEW JS/11q BLOG SITE - NEEDS YOUR INPUT! Hello everyone, I sent this message to everyone's email directly (as long as the member directory had a valid email address) in hopes of encouraging your Posted - Sun Nov 22, 2009 1:02 am	Heather my2boys4joy Offline Send Email
Re: JS Website... Moving to a blog type site Hi Erin, I have answered them next to the questions thought it might be easier to cut and paste that way!! Also have attatched a pic of Dylan and am happy to Posted - Sun Nov 22, 2009 1:02 am	Marie Hardey dylansmum77 Offline Send Email
Website I am always curious as to where everyone lives. Maybe adding a list of people and what state or country they are in? If you are up for that Idea I need this Posted - Sun Nov 22, 2009 1:01 am	Erin mommy2lissa Offline Send Email
Re: conference Hello, I hope to go to the conference in California next year but I was wondering how much information on interstitial deletions is given or discussed. I Posted - Sun Nov 22, 2009 1:00 am	cathy jaeger cj23cj23 Offline Send Email
Re: weight I don;t know if this help you or not, but all we needed to do was get a letter of medical necessity and prescription for Nick's primary doc, took it to the Posted - Sun Nov 22, 2009 1:00 am	joan romig romigt Offline Send Email
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