Top > Health Wellness > Support > Diseases and Conditions > Porphyria

This is a list for people with Porphyria . We care! Friends, families and caregivers are also welcome. It is a group for support and information exchange with a specific focus on ...(more)

Porphgroup is an on-line email list group which supports patients and family members of those suffering from, or who believe they have the genetic metabolic disease porphyria. ...(more)

Porphyria information, articles and links.

This group is for those of us who suffer from the various types of Porphyria and need a friend, advice, or just a place to vent. Porphyria is a rare metabolic disease that CAN ruin your ...(more)

Ask yourself how one doctor can totally disregard your "lower elevated levels", medical history, family history and your own doctors opinion and decide you don't have Porphyria without ...(more)

This is a list for people with Porphyria. Friends, families and caregivers are welcome. It is a group for support and information exchange with a specific focus on education, research ...(more)

This is a group for anyone in South California interested in reaching out to others with Porphyria. Although I'm the group owner I do not live there but started the group for a friend ...(more)

Porphyrin_Information_Research_Library(PIRL) is a list for individuals seeking viable, scientific research regarding the Metabolic disorders, which include Porphyria & Diabetes. The ...(more)

This group was formed strictly for the collection of data related to persons with confirmed cases of an acute porphyria. This is not a chat group and offers little support. It is ...(more)